Post Interferon Syndrome

Posted by jerbobs @jerbobs, Jan 31, 2018

What is known?

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@ladylilith121

I know exactly how you feel I'm suffering from their treatments

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I have Chronic EBV and apparently Autonomic Dysfunction as well. My life is all but over it seems. Funny thing...I don't look sick 🙁

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@ladylilith121

Is this your number to contact u

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Yes

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@rlxdlr

I have Chronic EBV and apparently Autonomic Dysfunction as well. My life is all but over it seems. Funny thing...I don't look sick 🙁

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No lie I'm in the same boat I'm sick every day I just don't look sick the treatments have destroyed my health

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@ladylilith121

No lie I'm in the same boat I'm sick every day I just don't look sick the treatments have destroyed my health

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I have another appt with a neurologist in May 25 if you can believe that. I work with a great Osteopathic DR who is always pushing me to alternative treatments. i will probably do some IV treatments here shortly. I need a good day. Myers Cocktail is one and massive Vit C IV tx. She has also recommended Ozone I can't get my head around it yet. I have been fkn around with this for 8 years slowly getting worse.

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@rlxdlr

I have another appt with a neurologist in May 25 if you can believe that. I work with a great Osteopathic DR who is always pushing me to alternative treatments. i will probably do some IV treatments here shortly. I need a good day. Myers Cocktail is one and massive Vit C IV tx. She has also recommended Ozone I can't get my head around it yet. I have been fkn around with this for 8 years slowly getting worse.

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I can imagine every since I got sick it's been the gastrologist then neurologist physical therapist a rheumatologist so I completely understand how u feel and my fibromyalgia is so severe it's debilitating me

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@ladylilith121

Is this your number to contact u

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Just a friendly reminder. You really should private message any personal contact information so you keep your privacy.

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I went through Interferon and Ribavirin treatment 23 years ago. It made me sicker than hell but, I toughed it out. Upon finishing, I told my Gastroenterologist that something is not right. My head was in a fog. I suffered from pain everywhere, I just ache. Perpetual nausea that no one has an answer for. Chronic fatigue on an almost daily basis. I went from working 100hr. weeks, to not being capable of holding a regular job. Doctors have no answer. I’m now 67 years old, this treatment destroyed my life.

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@yumpin

I went through Interferon and Ribavirin treatment 23 years ago. It made me sicker than hell but, I toughed it out. Upon finishing, I told my Gastroenterologist that something is not right. My head was in a fog. I suffered from pain everywhere, I just ache. Perpetual nausea that no one has an answer for. Chronic fatigue on an almost daily basis. I went from working 100hr. weeks, to not being capable of holding a regular job. Doctors have no answer. I’m now 67 years old, this treatment destroyed my life.

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Concerned for you. May I ask what was your diagnosis that they used this treatment for on you? This has not bettered since the treatment? How sad for you.

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