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@windyshores

I would recommend meeting with a hospice doctor. Most hospitals have a doctor specializing in palliative care and hospice, or you can call whatever local hospice service there is. They can give you an alternative viewpoint, which you can listen to and accept or reject.

Many people think hospice is for the final few days. My mother was on hospice for years (like Jimmy Carter). The service and meds are so helpful that she went off hospice twice, then back on a few months later.

I know it's hard but to me, with experiences I have had, it sounds like you are dealing with a wise and caring doctor who wants to avoid further suffering. It is hard being in the position of advocacy and decisions. I've been there. I think a second or even third opinion will help you.

But, again, I hope you can include a good conversation with a hospice doctor. They give you a new toolbox for comfort and quality of life.

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Replies to "I would recommend meeting with a hospice doctor. Most hospitals have a doctor specializing in palliative..."

He is already receiving palliative care. We spoke with hospice, but from the sound of it, once people are on that service, they can't get anymore treatment and the hospice will take over. How would that even work, to be on and then off hospice?