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Urge to urinate & pain and burning due to radiation: Tips?

Posted by cochuir @cochuir, Sep 11 6:11am

I had HDR brachytherapy, hormone and external beam radiation which finished in June 2024. Since then I have developed sever pain and burning when passing urine, I have had a CT urogram and different prescriptions but the result is still the same. Has anybody had these symptoms for that period of time and was there any medications or procedure that stopped them.

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larry1443 | @larry1443 | Oct 1, 2024
In reply to @larry1443 "Apologies if already asked, but is anyone going through radiation treatments experiencing a constant urge to..." + (show)
Profile picture for larry1443 @larry1443

Apologies if already asked, but is anyone going through radiation treatments experiencing a constant urge to urinate? With very little output. And with “tolerable“ burning pain while feeling the urge? No burning while urinating. Just while feeling the constant urge. Also just FYI I am on second monthly Lupron injection and so far, so good. No intolerable side effects. Someone on this forum mentioned monthly injections as they were slightly less potent. Thanks everyone and hang in there.

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Thank you. I will have to look into oxybutinin. I have had pelvic floor distinction for many years. My PCP warned me it may gat worse during radiation (only 7 days into radiation). May I ask what kind of therapy you had? I have had enormous relief with Amitriptyline but would like to get off it someday.

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robertmizek | @robertmizek | Oct 2, 2024
In reply to @larry1443 "Thank you. I will have to look into oxybutinin. I have had pelvic floor distinction for..." + (show)
Profile picture for larry1443 @larry1443

Thank you. I will have to look into oxybutinin. I have had pelvic floor distinction for many years. My PCP warned me it may gat worse during radiation (only 7 days into radiation). May I ask what kind of therapy you had? I have had enormous relief with Amitriptyline but would like to get off it someday.

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Everything was a variation on kegels (short duration and long duration) and core strengthening exercises.

Good luck on your continued journey!

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johnoclark | @johnoclark | Oct 3, 2024
In reply to @larry1443 "Apologies if already asked, but is anyone going through radiation treatments experiencing a constant urge to..." + (show)
Profile picture for larry1443 @larry1443

Apologies if already asked, but is anyone going through radiation treatments experiencing a constant urge to urinate? With very little output. And with “tolerable“ burning pain while feeling the urge? No burning while urinating. Just while feeling the constant urge. Also just FYI I am on second monthly Lupron injection and so far, so good. No intolerable side effects. Someone on this forum mentioned monthly injections as they were slightly less potent. Thanks everyone and hang in there.

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What type of radiation?

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larry1443 | @larry1443 | Oct 3, 2024
In reply to @johnoclark "What type of radiation?" + (show)
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What type of radiation?

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External beam. Second week done tomorrow My burning and urgency has gotten much better. Almost gone. I think it was the wine last weekend. Doubled my exercise and strength training (SilverSneaker online videos) and walking and miralax daily. Feeling pretty good.

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johnoclark | @johnoclark | Oct 3, 2024
In reply to @larry1443 "External beam. Second week done tomorrow My burning and urgency has gotten much better. Almost gone...." + (show)
Profile picture for larry1443 @larry1443

External beam. Second week done tomorrow My burning and urgency has gotten much better. Almost gone. I think it was the wine last weekend. Doubled my exercise and strength training (SilverSneaker online videos) and walking and miralax daily. Feeling pretty good.

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The type of ordinary external bean radiation 20 years ago could burn other body parts like the colon and turn the prostate gland to mush and be unremoveable. Today there are newer types.

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bandit11 | @bandit11 | Oct 4, 2024
In reply to @larry1443 "Apologies if already asked, but is anyone going through radiation treatments experiencing a constant urge to..." + (show)
Profile picture for larry1443 @larry1443

Apologies if already asked, but is anyone going through radiation treatments experiencing a constant urge to urinate? With very little output. And with “tolerable“ burning pain while feeling the urge? No burning while urinating. Just while feeling the constant urge. Also just FYI I am on second monthly Lupron injection and so far, so good. No intolerable side effects. Someone on this forum mentioned monthly injections as they were slightly less potent. Thanks everyone and hang in there.

Jump to this post

I had similar issue during proton radiation and radiologist recommended an
anti inflammatory such as advil or something similar. It didn’t eliminate the issue but did help.

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larryf954 | @larryf954 | Oct 4, 2024
In reply to @larry1443 "Apologies if already asked, but is anyone going through radiation treatments experiencing a constant urge to..." + (show)
Profile picture for larry1443 @larry1443

Apologies if already asked, but is anyone going through radiation treatments experiencing a constant urge to urinate? With very little output. And with “tolerable“ burning pain while feeling the urge? No burning while urinating. Just while feeling the constant urge. Also just FYI I am on second monthly Lupron injection and so far, so good. No intolerable side effects. Someone on this forum mentioned monthly injections as they were slightly less potent. Thanks everyone and hang in there.

Jump to this post

I also had the frequent urination and burning during external beam radiation. I took cranberry extract; 400 mg of advil twice a day (Dr suggested 600mg 2x per day); and flomax 2x daily. It significantly reduced the burning and reduced the evening frequency from 3x to 1-2x

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larry1443 | @larry1443 | Oct 4, 2024
In reply to @larry1443 "Apologies if already asked, but is anyone going through radiation treatments experiencing a constant urge to..." + (show)
Profile picture for larry1443 @larry1443

Apologies if already asked, but is anyone going through radiation treatments experiencing a constant urge to urinate? With very little output. And with “tolerable“ burning pain while feeling the urge? No burning while urinating. Just while feeling the constant urge. Also just FYI I am on second monthly Lupron injection and so far, so good. No intolerable side effects. Someone on this forum mentioned monthly injections as they were slightly less potent. Thanks everyone and hang in there.

Jump to this post

Thank you. I am at the end of week two and the burning is gone and the frequent urgency is much improved. I may be wrong but I think drinking wine last weekend Friday night and Saturday night may have been the culprit. My biggest issue now is having a chronic cough (hard racking cough) off and on and trying not to cough and move during the radiation treatment. So far so good but it comes on suddenly and unexpectedly. Best wishes on your continued recovery.

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q95oldies | @q95oldies | Oct 5, 2024
In reply to @larry1443 "Apologies if already asked, but is anyone going through radiation treatments experiencing a constant urge to..." + (show)
Profile picture for larry1443 @larry1443

Apologies if already asked, but is anyone going through radiation treatments experiencing a constant urge to urinate? With very little output. And with “tolerable“ burning pain while feeling the urge? No burning while urinating. Just while feeling the constant urge. Also just FYI I am on second monthly Lupron injection and so far, so good. No intolerable side effects. Someone on this forum mentioned monthly injections as they were slightly less potent. Thanks everyone and hang in there.

Jump to this post

I had that too for around 3 weeks after radiation. Extreme burning
when urinating. Little sleep.

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Profile picture for larry1443
larry1443 | @larry1443 | Oct 13, 2024
In reply to @larry1443 "Apologies if already asked, but is anyone going through radiation treatments experiencing a constant urge to..." + (show)
Profile picture for larry1443 @larry1443

Apologies if already asked, but is anyone going through radiation treatments experiencing a constant urge to urinate? With very little output. And with “tolerable“ burning pain while feeling the urge? No burning while urinating. Just while feeling the constant urge. Also just FYI I am on second monthly Lupron injection and so far, so good. No intolerable side effects. Someone on this forum mentioned monthly injections as they were slightly less potent. Thanks everyone and hang in there.

Jump to this post

Has anyone experienced burning urinary frequentcy and urgency during external beam radiation? Any meds that can help? Thanks 🙏

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