I replied to you on another thread, but no you are not alone. I also had balloon dilation and it gave me no relief. My procedure was about six months ago so I don’t expect anything. My condition just gets worse. I have the most discomfort on the left side, but both ears are impaired.
I also had hyperbaric oxygen suggested, but after your experience I will not go forward with that.
You are right, doctors don’t understand and don’t have a treatment for this.
But, you are not the only one suffering with this. My Audiologist told me that since Covid she has many people with similar complaints.
I don’t remember if you said you had Covid. Mine started a few weeks after feeling recovered from Covid.