Chemo for bladder cancer started my chronic kidney disease.
Anybody else get Chronic Kidney disease from chemo? I was diagnosed with bladder cancer in 2016. I immediately went on chemo twice a week for 3 months before my bladder removal procedure. The doctors worked on me for 6 hours. My bladder had to be completely removed because the cancer had progressed that bad. Last year my doctor told me that I was out of the woods and didn't have to make any more follow up appointments. Then I contracted Covid and was in the hospital for 8 days. I started having all kinds of problems after that. I was anemic and had to have an iron infusion. I had terrible itching all over my body and that drove me nuts to the point that I had scratched so hard that I made little sores all over my legs and back. That's when I saw a nephrologist who told me that I had stage 4 kidney disease which was escalated from Covid. I can't remember my exact numbers, but was told they were not good and I should probably make an appointment for vein mapping. That's so you can start dialysis when needed. No way! I didn't like the quality of life I had for 3 months during chemo so I wasn't going to go through that again! I am 72 years old and would like to enjoy the years I have left. The alternative was explained to me. Hospice will come to help take care of you at home. You will start to sleep more and more and one day you just won't wake up. I don't want to die, but that sounds like a pretty good way to do it if you choose. Anyway, I eat and drink what I want and sleep when I want. My kidney numbers are better and have stabilized. My nephrologist told me I don't know what you are doing, but keep doing it. I have contacted all my family members about a kidney transplant. None of them match. When I informed them about the kidney trade, nobody volunteered their kidney so that I could receive another that matched my blood and tissue type. I was devasted! I would have been the first in line to donate any part of my body to help any of them!!! I guess I know what my value is to my family is now and it hurts really bad. So, I go on doing what I want when I want. My name is Mary, I am a mother of 2, grandmother of 4, and great-grandmother of 5. God has been good to me.
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Mary, I'm sure your family values you. They are afraid of the surgery. If you get on a transplant list, you'll have a wait, but you are holding steady and have time to wait. Bless your chances with luck.
How to get on a kidney transplant list
https://transplantliving.org/kidney/the-kidney-transplant-waitlist/#:~:text=Contact%20the%20transplant%20center%20and,your%20doctor%20to%20refer%20you.
I was diagnosed with PKD 25 years ago. At that time, my kidney function was 75%. Six years ago, I was diagnosed with rectal cancer. My GFR was 53%. I had 2 rounds of chemo and 27 radiation treatments. My oncologist and nephrologist said the chemo would not cause any harm to my kidneys. I didn't believe them, but went ahead with the treatments. After chemo, my kidney function dropped from 53% to 27% within a few weeks.🙄 I am glad to hear your numbers are stable! Mine have been pretty much stable over the past 6 years. All we can do is to try our best and keep the faith!♥️