Post Interferon Syndrome

Posted by jerbobs @jerbobs, Jan 31, 2018

What is known?

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rlxdlr | @rlxdlr | Oct 2 5:23pm

In reply to @ladylilith121 "I know exactly how you feel I'm suffering from their treatments" + (show)

I have Chronic EBV and apparently Autonomic Dysfunction as well. My life is all but over it seems. Funny thing...I don't look sick 🙁

ldestella | @ldestella | Oct 2 5:37pm

In reply to @ladylilith121 "Is this your number to contact u" + (show)

Yes

ladylilith121 | @ladylilith121 | Oct 3 6:28pm

In reply to @rlxdlr "I have Chronic EBV and apparently Autonomic Dysfunction as well. My life is all but over..." + (show)

No lie I'm in the same boat I'm sick every day I just don't look sick the treatments have destroyed my health

rlxdlr | @rlxdlr | Oct 3 6:38pm

In reply to @ladylilith121 "No lie I'm in the same boat I'm sick every day I just don't look sick..." + (show)

I have another appt with a neurologist in May 25 if you can believe that. I work with a great Osteopathic DR who is always pushing me to alternative treatments. i will probably do some IV treatments here shortly. I need a good day. Myers Cocktail is one and massive Vit C IV tx. She has also recommended Ozone I can't get my head around it yet. I have been fkn around with this for 8 years slowly getting worse.

ladylilith121 | @ladylilith121 | Oct 4 6:30am

In reply to @rlxdlr "I have another appt with a neurologist in May 25 if you can believe that. I..." + (show)

I can imagine every since I got sick it's been the gastrologist then neurologist physical therapist a rheumatologist so I completely understand how u feel and my fibromyalgia is so severe it's debilitating me

parrot53 | @parrot53 | Oct 7 9:13am

In reply to @ladylilith121 "Is this your number to contact u" + (show)

Just a friendly reminder. You really should private message any personal contact information so you keep your privacy.

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