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Essential thrombocythemia

Blood Cancers & Disorders | Last Active: Oct 16 9:36am | Replies (142)
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@tessa

Time sure does go fast at times. I ended up only taking aspirin for the ET and went on to have 3 healthy kids. Unfortunately in 2023 my symptoms started changing and I had a BMB that showed that I had progressed to MF. March of 2024 I had a SCT at Mayo Clinic for which I am still working my way through. It has been quite a ride. Had many years with no symptoms or issues then things went downhill fast. I am hopeful this SCT will ramp up and I will get back to life with my kids and husband.

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Replies to "Time sure does go fast at times. I ended up only taking aspirin for the ET..."
Lori, Volunteer Mentor | @loribmt | Oct 2 11:33am

Hi Tessa, Wow, you’ve had quite a story to write over the years! Congratulations on your SCT! I’m post 5 years on my SCT and doing fabulous. In fact, I’m just on our way to Rochester today for my annual check-in with my transplant Doctor.
You’re a relative newbie yet. We have quite a growing ‘club’ here in the forum with those of us who have had BMT/SCT for various reasons. Would love to invite you over to this discussion:
My Bone Marrow Transplant (BMT/SCT) story: Will you share yours? https://connect.mayoclinic.org/discussion/my-bone-marrow-transplant-bmt-story-will-you-share-yours/

Another fun discussion is this one: Snapshots of hope: Life on the other side of transplant. https://connect.mayoclinic.org/discussion/snapshots-of-hope-life-on-the-other-side-of-transplant/

I hope you’ll join us over on those posts. You’ll meet @alive @edb1123 @kt2013 @jenmkr63 @jrwilli1 @dwolden @graycoose @katgob @mary612 and many other members who have had their transplants or are caregivers for family members. Some of us have 10+ years beyond transplant and others are newbies too!
It takes time and patience during recovery. Energy and stamina slowly return and you start getting your life back to a level of normalcy. It’s challenging, especially with having a family to raise. Hang in there. It gets better! Thank you for checking in!
Where you at Mayo-Rochester?

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