I literally laughed out loud today when they called to schedule my tests for SIBO…..earliest available appointment is February 2025! Lol.

Hi,
I had SIBO up until 8 weeks ago. Underwent a 4 week treatment and got rid of it but am now struggling to fend it off again. I have IBS C+D and autonomic polyneuropathy which is destroying my digestive system. Because I'm only able to eat and digest a very small amount of food per day my strength has become almost none existant and certainly no stamina, struggling to walk much. Any attempt to eat more results in yet another bout of SIBO. One of the foods I was told not to eat was cabbage, it certainly makes a difference to me. Sadly I like my cabbage and now am limited to bland foods to try and keep SIBO in check. All ready have a course of medication waiting if I can't shake it off. With my digestive problems it will continue to happen regularly until malnutrition gets me.
Cheers

Wow, good advice. Thank you

Everything I've read about going to Cedar's in LA is that they just give out a prescription for the 2 drug regimen and no instructions or follow up. They were very disappointed especially those that flew there from other locations.

I have had IBS-D for over 40 years. I have been gluten free for 13 years and it's helped but I still get days when I can't leave the house. Was tested for SIBO years ago and it came out that I made methane gas. Which is odd since methane gas is supposed to make you constipated. I have used the Fodmap diet to guide me. I stay away from gluten and dairy products but still have problems. I do feel better if I don't eat a lot at one meal.

I have never had a test. I just saw this was listed on my medical records in the paperwork for my referral to UCLA. Doctors have never discussed it with me. They have said I have a sensitive gut but that is all.

Your writings touch my heart. I, too struggle every day and have done so for many years. The wolves of depression lurk all around me. I have to keep my fire burning or they will attack. Staying busy, counting my blessings, competitive exercise, quilting, scrubbing my floor, cleaning the toilet, loving my dogs. I count my blessings.

Hi,
If I can lighten anybodies load why not. A problem shared can make us feel like one of the gang and not alone.
I hate being asked "hows my day" frankly I'm starting to forget what a good day felt like and don't have the time or patience to discuss it. Well actually I do have the time, the person asking likely won't have the time to listen, so simply put crap has become the standard answer. I keep being told crap happens but I don't think they realise I wish it would with this disease! Anyway it would and does mean very little to anyone not invested in my life.
You get to the point of why bother I seem to be the only one concerned with what life is dealing me. Kind of out of sight, out of mind for the proffesionals. I'm noticing the hand eye coordination is bad today, matches the ability to spell. Started the day with bad test results so it will be a day of subdued activity waiting this one out, yet again.
I'm a cat person or more importantly he's a human person! The cat has rank over both of us and I figure I'm bottom of the totum pole in this house hold. I know my place, until my help is required, then I can shine.
Cheers