I am actually the only person in my family to be diagnosed! My family is from a very poor area of the country and I am the first one to have a SCA. It was treated very atypically and the tests performed at the time were tox screens and STD panels - I had to ask for a genetic test years later when I began to learn more. I did not have the standard cardiac workup and have had to advocate for myself to have such because I had my cardiac arrest blamed on my gender identity/sexual orientation - part of why I want to move as well haha