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Myxofibrosarcoma: What treatments did you have?
Sarcoma | Last Active: Oct 7 12:35pm | Replies (104)Comment receiving replies
Hi all,
I wanted to update you since my post on 5/27. I had 25 treatments (5 wx, 5 days a week) and then had 6 wx for the radiation to do its thing. Not fun. On 9/10, my tumor was removed and sent to the lab. 2 days after I received the most incredible news that my surgeon got it all/all negative margins for sarcoma. On 9/16 my plastic surgeon did the flap surgery (differs from a skin graft) which involved taking skin from my thigh and attaching its blood vessels to the blood vessels left in the large hole in my foot. I spent 8 nights in the hospital as they had to check the flap every hour round the clock for 48 hours to make sure it stayed alive. It’s a fascinating procedure that has literally blown my family and friends away. Now I face about a 2 month recovery. I am wheelchair bound and my leg must be elevated and straight out at all times. I’m anxious for my first follow up on Thursday. I’m so fortunate and grateful to my amazing team of doctors and though I have a long road ahead I’m in a very different place emotionally than I was in May when I was first diagnosed. I hope this may help someone that was as terrified as I was when first getting the news. Best to everyone.
Replies to "Hi all, I wanted to update you since my post on 5/27. I had 25 treatments..."
@ljt61, such good news. I hope you'll continue to post on your road to recovery. How did your first follow-up go?
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I find it very interesting that you had a flap done, too. However, my surgeon took the skin and blood vessel from my left arm and then a patch from my right thigh for a graft over my arm. Unfortunately the surgeon was very concerned about my flap failing that he stuffed the flap with way too much fatty tissue. I guess he felt the fatter it was the more successful the flap. My flap sticks out at least an 1 1/2 inches from my leg and is about six inches long. It is very hideous looking and I hate it, but the flap has not failed, which I was told that 95% of the flaps fail. It’s been two years since my flap surgery and three years since my cancer surgery. I did have chemo therapy. I think about eight rounds of chemo. They wanted to be sure that they got it. All is well now. Even my neuropathy isn’t as bad. Although the hot days still bothers my leg. A wet cloth and elevation seems to help that. I did accomplish something I never thought I would do and that was ride my bicycle for 52 miles in a charity ride. I have far exceeded any goal I have set for myself this year and it only gets better. I hope you have as much success with your recovery and future. Best of luck.