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@mich777

I had a massive pulmonary embolism in my lungs called Saddle Block on May 4. I was admitted into ICU for 7 days. I was administered IV heparin drip and clot buster medicine. The heparin caused me to bleed in my urine. I was discharged home on Eliqise 5mg , twice a day. I have to take this medication for the rest of my life. Ever since I have been taking Eliquise , I am having constant muscle, joint, and vein pain, swelling I my knees, and being unable to rise from a sitting to standing position without experiencing severe leg and knee pain and weakness. I have to walk with a walker and cane and may need a wheelchair in the future. I have never had these symptoms before taking eliquise. I told my doctor but he thinks it may be arthritis or autoimmune disease. Even though I have Osteoporosis, Osteoarthitis, Fibromyalgia, and lower back problems for many years, these symptoms are new and debilitating. It seems the Eliquise exuberant my conditions. I cannot stop taking eliquise because I could get another massive blood clot. Can anybody else relate to the symptoms I am experiencing?

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Replies to "I had a massive pulmonary embolism in my lungs called Saddle Block on May 4. I..."

My husband had an echo done prior to his 6th month checkup with his cardiologist. It showed a “significant” left ventricle apical thrombus(blood clot). Due to a massive left ventricle heart attack in 2020 his systolic function is severely decreased and his EF=25 +- 5%. He was on 5mg Eliquis for almost 2 years due to Afib but came off 1 1/2 years ago following Watchman placement(right ventricle). He is now on 5mg/2x/day and his Metoprolol has been increased from 50 mg/1x/day to 62.5mg. We have complete trust in his Cleveland Clinic cardiologist and because we left soon after the appointment for the next few months in Florida an appointment was set up with a Weston Cleveland Clinic cardiologist who we saw last week. He explained further what the concerns were, the risks of a heart attack or stroke and answered all questions that we had. He’ll fly back to Cleveland in January for another echo and appointment with his main cardiologist. So far, he’s having no side effects from the Eliquis or Metoprolol increase but will now watch for this side effect from Eliquis too. We haven’t been told yet how long he’ll be on them but suspect that even if the echo shows the thrombus has dissolved he’ll be kept on at least 5mg for life. I’m so sorry that you’ve not only had to deal with the terror of having a blood clot in your lung but now the damage from a rare side effect of the blood thinner.