1. < Chronic Pain

Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

1kay2 | @1kay2 | Sep 30 4:01pm
In reply to @tbrksweetyahoocom "Hi, I'm Barb. In 2020, a few weeks after colorectal cancer surgery, headed to rr when..." + (show)
@tbrksweetyahoocom

Hi, I'm Barb. In 2020, a few weeks after colorectal cancer surgery, headed to rr when I got lightheaded/fainted and went straight down on my butt. I ended up with 3 lumbar compression fractures (1 later collapsed). (I almost died at my cancer surgery - took 4 months to get back home after hospital stays and physical rehab hospitals to be able to walk again.). The orthopedic surgeon wouldn't operate cuz I wasn't strong enough for rod, brackets, screws to fix my back. So now I have hump back and wear 100 Mcg Fentanyl patch. I tried different pills, and would actually like morphine, but my PCP wouldn't scribe it. Fentanyl helps a little, but now my cancer is back (recurrent) and am having new butt pain and numbness down to my knees, sometimes to my toes. I get so tired of repeating problems to all the Drs.

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All I can say is I am so sorry, I have no answers.

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redfeatherdd | @redfestherdd | Sep 30 4:51pm

I have Neuropathy all over my body including my throat which inhibits my ability to speak and swallow. I would be interested in a group for Laryngeal Sensory Neuropathy.

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marquis113 | @marquis113 | Sep 30 6:58pm
In reply to @marquis113 "Well I was not only addicted to tramadol I now have Castro parents and restless legs..." + (show)
@marquis113

Well I was not only addicted to tramadol I now have Castro parents and restless legs from it. Would never recommend. I am basically in pain all the time. I wake up with it and go to bed with it. Tylenol helps enough so I can tolerate it. Injections never helped and surgeons destroyed my back. Stimulator helps slightly. Like I said, I have dealt with daily pain for over 20 yrs.

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Should be gastroparesis from tramadol

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2 replies
marquis113 | @marquis113 | Sep 30 6:59pm
In reply to @heisenberg34 "Do you get any pain mitigation from your pump? I've had mine for well over a..." + (show)
@heisenberg34

Do you get any pain mitigation from your pump? I've had mine for well over a year and have never had any pain relief. Mine has hydromorphone. Trial with morphine offered no positive results.

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I have an electrical stimulator which doesn't give much relief

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1 reply
marquis113 | @marquis113 | Sep 30 7:01pm
In reply to @heisenberg34 "Thanks for your reply. I have had this pump output increased more times than I can..." + (show)
@heisenberg34

Thanks for your reply. I have had this pump output increased more times than I can recall. It got so high that I was beginning to get dizzy along with a host of symptoms that I can't remember. I'm in the process of reducing the out put so I can have it removed. Yes, this doc added some kind of anesthetic, but it only made things worse. You name it, I've done it. I am hoping to get a trial of Boston Scientific's waverider SCS soon. In my current state, I can't do much...no walking much, no cycling. no working in my shop, no long didtance car rides.

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I have the Boston scientific stimulator. Had it adjusted several times with minimal relief. Basically they have told me there's nothing else they can offer. Reactions to over 40 meds so not much else they can do.

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1 reply
heisenberg34 | @heisenberg34 | Sep 30 8:31pm
In reply to @marquis113 "I have the Boston scientific stimulator. Had it adjusted several times with minimal relief. Basically they..." + (show)
@marquis113

I have the Boston scientific stimulator. Had it adjusted several times with minimal relief. Basically they have told me there's nothing else they can offer. Reactions to over 40 meds so not much else they can do.

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How did the trial go for you? Any significant pain relief?

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marquis113 | @marquis113 | Oct 1 9:49am

Seemed to help some. I think it does give some relief but not enough to give major relief

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covidstinks2023 | @covidstinks2023 | Oct 1 11:44am
In reply to @tbrksweetyahoocom "Hi, I'm Barb. In 2020, a few weeks after colorectal cancer surgery, headed to rr when..." + (show)
@tbrksweetyahoocom

Hi, I'm Barb. In 2020, a few weeks after colorectal cancer surgery, headed to rr when I got lightheaded/fainted and went straight down on my butt. I ended up with 3 lumbar compression fractures (1 later collapsed). (I almost died at my cancer surgery - took 4 months to get back home after hospital stays and physical rehab hospitals to be able to walk again.). The orthopedic surgeon wouldn't operate cuz I wasn't strong enough for rod, brackets, screws to fix my back. So now I have hump back and wear 100 Mcg Fentanyl patch. I tried different pills, and would actually like morphine, but my PCP wouldn't scribe it. Fentanyl helps a little, but now my cancer is back (recurrent) and am having new butt pain and numbness down to my knees, sometimes to my toes. I get so tired of repeating problems to all the Drs.

Jump to this post

Barbara, I am so so sorry you are going through all of this. I know this is discouraging as you have been through so much.

I am praying for you right now. Blessings & Prayers.....

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barbarasolinski | @barbarasolinski | Oct 2 9:45am

Hi, just joining this group. I have chronic pain due to osteoarthritis all over. I've had both knees replaced with complications, a sns in lumbar spine due to failed back surgery, having shoulder replacement in 3 weeks, neck pain for which they want a sns for pain relief & pain in hands, other shoulder. That's all due to osteoarthritis. Wish there was a cure or treatment.

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kenc | @kenc | Oct 2 10:03am
In reply to @marquis113 "I have an electrical stimulator which doesn't give much relief" + (show)
@marquis113

I have an electrical stimulator which doesn't give much relief

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Same here.

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