← Return to Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

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Profile picture for ejrquast @ejrquast

I am so sorry to hear about your dad’s side effects to Zanubrutinib. I recommend you contact the I.W.M.F. (International Waldenstrom’s Macroglobulinemia Foundation) for support. I happen to be a support group co-leader for MN/W.WI. and can direct you and your parents to links that would be helpful. If you would like to communicate privately, please send a private message.
I am aware that oncologists are cautious about recommending a treatment for those of us considered frail, as we can experience side effects that younger patients may not experience.
Thank you for reaching out for direction and support.
Eunice

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Replies to "I am so sorry to hear about your dad’s side effects to Zanubrutinib. I recommend you..."

would you be kind enough to provide the link to I.W.M.F. please.
I have Waldrenstroms.