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Has anyone had IVIG Infusions for Neuropathy?

Neuropathy | Last Active: Oct 3 7:57am | Replies (491)

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@artemis1886

No I still have the problems with my feet, hands and ribs, along with cardiac autonomic neuropathy. I just started loading dose is 5 days then every 28 days for two days or it might be every two weeks based on how I do. It takes 4-6 months to start working according to the doctor and infusion pharmacist. My mouth is no longer breathing out and no longer have the headache as of on day 3 that stopped. I have today and tomorrow left for the loading dose first 5 days when you first start IVIG. . Loading dose is your first dose of IVIG. My problem is autoimmune neuropathy.

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Replies to "No I still have the problems with my feet, hands and ribs, along with cardiac autonomic..."

Hi @artemis1886 ,
I drink as much water as possible, 100oz +, the day before, the day of, and the day after my infusion. I also have an over the shoulder bag, not an IV stand, so I move as much as possible, usually right after my blood pressure is checked, so I have a few minutes for it to come back down.

JFN