Hello @casscond, I'd like to add my welcome as well.
You have mentioned seeking care at Mayo Clinic in a few different posts. Have you already gone through with the appointment request (http://mayocl.in/1mtmR63)? There are a few different options for requesting an appointment. You can self refer or have a physician refer.
There is also a referring physician portal where your current provider can share: Clinical notes, Discharge notes, Patient itinerary, Radiology and pathology reports, Test results, Surgical summaries and Visit summaries. It is called Care Link (https://carelink.mayoclinic.org/). If you have a physician that is open to helping and giving you a referral, this may be a resource you could share with them if they are willing to take the time to use the portal.
Appointment demand is high, so appointments may be more difficult to come by. However, if you are granted an appointment you can also bring your records with physically to your appointment (CDs, disc drives, etc.). This is always a good option in case something is lost digitally in the process.
@casscond - you are facing a lot of tough medical situations on top of getting close to graduating college. How are you finding ways to cope with what surely seems like a lot of stressful things to manage as a young person?
I actually have a phone call tomorrow with a patient navigator about that, and if needed I will have my doctors send the referall! I have a loooot of records due to being in a coma and having IBD for over 12 years so it'll be a bit of a proccess haha.
I cope by just telling myself there is a light at the end of the tunnel - I will eventually be somewhere I am taken care of, loved, and able to thrive! I also love school and reading and going outside so I use that as an outlet.