@bocky
Greetings and welcome to Mayo Clinic Connect.
I would like to share a link with you which you may have already found, since you found this group.
https://www.mayoclinic.org/diseases-conditions/mgus/symptoms-causes/syc-20352362
It’s always disturbing when you hear that MGUS is a condition that precedes Multiple Myeloma. The important distinction is that all Multiple Myeloma patients first have MGUS, not all MGUS patients get Multiple Myeloma. In fact, the chance of progression is very low, generally about 1% a year.
Typically, unless a MGUS patient’s numbers meet a high threshold, MGUS is not treated.
MGUS is not cancer, but is best treated by a hematologist/oncologist who has experience treating Multiple Myeloma. Your doc will order blood tests at regular intervals such as every three to six months. Sometimes less often if your numbers are very low.
People generally have lots of questions about numbers and blood test results. It’s really good to have that discussion with your physician. Although there’s some very experience members in this could give you a pretty good indication, I think it’s important to look at coexisting conditions, and other issues that might Require more scrutiny. Age, overall general health are also considerations. I always make it a practice to write my questions down ahead of time so I don’t forget, and I even haul someone along with me because I think it’s pretty normal to be a little uptight about that meeting and I tend to forget sometimes what I’ve been told. I was diagnosed three years ago and my numbers have been very stable. I see my hematologist/oncologist every six months now. I am 72 and I have type 2 diabetes as well as MGUS. I’m otherwise pretty healthy. I try to eat well, get my sleep, stay active and avoid alcohol and sugar. I guess that’s redundant. 😉
Have you had a chance to meet with your doctor and ask your questions?