My hair is twisted under my scalp…it moves down my body coming out

Posted by mimi44 @mimi44, Jul 1, 2024

My hair is twisted under my scalp I can move it so it goes down through my body sometimes it’s behind my eyes in my throat I gag get dizzy feel like I might die can anyone help me? Has anyone else ever had anything like this

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This sounds like an absolute nightmare. Have you seen a rheumatologist?

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@mimi44

Discs in upper spine…maybe I’m not saying it right? I think that’s what they called them….like in my neck

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@mimi44 “C” discs are Cervical, “T” discs are Thoracic and “L” discs are Lumbar. I didn’t know all this either - someone here explained this to me. So you described them correctly.

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@hmmartin85

I thought I was losing my mind especially after trying to explain this to different types of doctors for over a year with no answers. Everything you wrote I suffer from, do you know what's causing this or have any answers related to this condition?

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Welcome to Mayo Connect @hmmartin85 ! I’m glad you found us. Be sure to read the other discussions here about caregiving and dementia.

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I've been dealing with this now for about 7 years myself and am wondering if it's not some kind of twist internally. In 2020 I was rushed to the hospital with a strangulated bowel and underwent emergency surgery. Prior to that I had extreme pain in my lower abdomen and groin. I do not suffer from pain anymore although this troublesome "hair" has never gone away but instead become worse and more irritating. I find myself constantly trying to "pluck" it, cut it, and at my worst even tried burning it off. It feels as thoughts times it's strangling me, or I'll choke on it. It has obstructed my ability to swallow food or Medicines and generally lowered my quality of life. If anyone has learned anything more about their own symptoms I'd love to hear it. I've learned not to panic when these sensations come on but there were many times in the past where I also felt like I was dying. This issue has definitely been a challenge to deal with

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@heybilly1977

I've been dealing with this now for about 7 years myself and am wondering if it's not some kind of twist internally. In 2020 I was rushed to the hospital with a strangulated bowel and underwent emergency surgery. Prior to that I had extreme pain in my lower abdomen and groin. I do not suffer from pain anymore although this troublesome "hair" has never gone away but instead become worse and more irritating. I find myself constantly trying to "pluck" it, cut it, and at my worst even tried burning it off. It feels as thoughts times it's strangling me, or I'll choke on it. It has obstructed my ability to swallow food or Medicines and generally lowered my quality of life. If anyone has learned anything more about their own symptoms I'd love to hear it. I've learned not to panic when these sensations come on but there were many times in the past where I also felt like I was dying. This issue has definitely been a challenge to deal with

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I’ve not gotten any answers or help from any test or doctors. I’m sorry that you are experiencing these same symptoms. Some days and times are terrible I know! I just keep hoping someone will find a reason and solution!

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@heybilly1977

I've been dealing with this now for about 7 years myself and am wondering if it's not some kind of twist internally. In 2020 I was rushed to the hospital with a strangulated bowel and underwent emergency surgery. Prior to that I had extreme pain in my lower abdomen and groin. I do not suffer from pain anymore although this troublesome "hair" has never gone away but instead become worse and more irritating. I find myself constantly trying to "pluck" it, cut it, and at my worst even tried burning it off. It feels as thoughts times it's strangling me, or I'll choke on it. It has obstructed my ability to swallow food or Medicines and generally lowered my quality of life. If anyone has learned anything more about their own symptoms I'd love to hear it. I've learned not to panic when these sensations come on but there were many times in the past where I also felt like I was dying. This issue has definitely been a challenge to deal with

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I’ve got the sAme thing and your the first person I’ve found to have what I seem to have too …… my ears have been twisted and have discovered it’s effected all the way down to my waist and hair in that area now

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I’ve Got the same thing your not alone no one has been able to help me

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@shonadanielle

I’ve Got the same thing your not alone no one has been able to help me

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I’m so sorry! It is still not right but I just don’t get any help….from doctors and family and friends either looking at me like I’m making it up or saying they find nothing wrong. I have mixed feelings to hear that there are more than just me having these problems…sorry for you yet a little bit hopeful that maybe one of us will get some relief and answers!

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@heybilly1977

I've been dealing with this now for about 7 years myself and am wondering if it's not some kind of twist internally. In 2020 I was rushed to the hospital with a strangulated bowel and underwent emergency surgery. Prior to that I had extreme pain in my lower abdomen and groin. I do not suffer from pain anymore although this troublesome "hair" has never gone away but instead become worse and more irritating. I find myself constantly trying to "pluck" it, cut it, and at my worst even tried burning it off. It feels as thoughts times it's strangling me, or I'll choke on it. It has obstructed my ability to swallow food or Medicines and generally lowered my quality of life. If anyone has learned anything more about their own symptoms I'd love to hear it. I've learned not to panic when these sensations come on but there were many times in the past where I also felt like I was dying. This issue has definitely been a challenge to deal with

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This sounds just awful and I’m so sorry you’re suffering so badly. It sounds like a possible Thyroid problem. Ask your doctor to run a Thyroid Panel on you and check your T3-Free, T4-Free, TPO Antibodies and your TSH. You should get some answers with this test. Good luck!

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@lkirnbauer

This sounds just awful and I’m so sorry you’re suffering so badly. It sounds like a possible Thyroid problem. Ask your doctor to run a Thyroid Panel on you and check your T3-Free, T4-Free, TPO Antibodies and your TSH. You should get some answers with this test. Good luck!

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Thank you for any help or suggestions! I will ask my doctor about these tests!

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