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Required appointments with BE pulmonologist

MAC & Bronchiectasis | Last Active: Sep 29 5:35pm | Replies (14)

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@lvnl

Hi @blm1007blm1007, I'm enrolled in the Encore study at New York University/Langone in NYC. I live in NYC so while it's WAY MORE doctor appointments than I would like to live with, I'm motivated to hit this thing now at age 69, while I'm active & in relatively good health, and am fortunate enough to have access to excellent health care. I do have permanent lung damage but it's mild and not cavitary. I also am on Humira, an immune modulator, for an auto-immune condition and no one wants me to go off that as it has been very helpful for me, but it puts me at higher risk for the MAC to progress, and to progress more quickly. Thus, the recommendation to get treated. So here we are. More folks on immune modulaters (suppressants) get MAC, of course, which is one reason it is starting to get more common, more known and discovered more often and earlier, since so many people are going on these drugs for autoimmune conditions and there is just more testing all-around. Best wishes to you and to all of us!

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Replies to "Hi @blm1007blm1007, I'm enrolled in the Encore study at New York University/Langone in NYC. I live..."

Thank you so very much for your reply and the most important information about the immune modulators.
It just goes to show us that there are so many reasons for the health problems we humans develop. I myself have had minor bouts with my immune system but nothing any doctor said I had to go on immune modulators for.
As with so much in life one thing can lead to another, the best intentions can go awry, the most carefully thought out made plans can still go wrong.... so as we have all learned .......all involved have to do our/their best to know what direction we should go in and hope it does prove to be the right thing to do.
I am originally from N.J. and now in OKC for over 50 years. I am so glad for my sister's sake that she; at the Jersey shore. Belmar; can have the best of care if she will venture into NYC when she needs it. Multiple good hospitals and facilities in NYC.
Thanks again,
Barbara