Connect
← Return to Waldrenstrom macroglobulinemia: Anyone on zanubrutinib?
Discussion
Waldrenstrom macroglobulinemia: Anyone on zanubrutinib?
Blood Cancers & Disorders | Last Active: Oct 21, 2024 | Replies (14)Comment receiving replies
Good questions that I will asking the doctor Thursday at my dad’s appt. It is my understanding that my dad lapsed in infusion txs due to his doc leaving and my dad not following up. When he finally did the new doc felt that infusions were passé and wanted to move forward with the pills. My mom and and dad agreed. And here we are.
And. Thank you for your sentiment.
Replies to "Good questions that I will asking the doctor Thursday at my dad’s appt. It is my..."
Connect
Hi @teachpeace I have Waldenström's for 2 1/2 years getting regular infusions but my neuropathy kept getting worse, so my oncologist put me on zanubrutinib as well. three months now and my neuropathy is finally getting better - I can curl my toes again!. My side effects are fatigue and bleeding under the skin of my arm - looks like a bad bruise. I am sorry your father is getting a worse reaction. I did get an anti-nausea pills in my mix that I need sometimes. I am very happy with my progress but will be happy to get off the meds.