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Essential thrombocythemia

Blood Cancers & Disorders | Last Active: Oct 16 9:36am | Replies (142)

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@loribmt

Good morning, @tessa. Thirteen years have flown by since you first posted this new discussion about being diagnosed with ET. You were 27 at the time and hesitant to start taking meds for the condition. After a followup consult with Mayo, at that time you only required aspirin to reduce the possibility of blood clots from having the increased platelet level. There was understandably a concern about wanting to have children if you were taking the Hydroxyurea.
Would you be willing to share how life has been over the past decade? Have you been able to raise a family? Has your ET diagnosis/treatment changed over this time period?

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Replies to "Good morning, @tessa. Thirteen years have flown by since you first posted this new discussion about..."

Time sure does go fast at times. I ended up only taking aspirin for the ET and went on to have 3 healthy kids. Unfortunately in 2023 my symptoms started changing and I had a BMB that showed that I had progressed to MF. March of 2024 I had a SCT at Mayo Clinic for which I am still working my way through. It has been quite a ride. Had many years with no symptoms or issues then things went downhill fast. I am hopeful this SCT will ramp up and I will get back to life with my kids and husband.