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Newly diagnosed with AML (FTL3 TKD)

Blood Cancers & Disorders | Last Active: Oct 29 10:04am | Replies (16)

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@jamielynn777

Hi Lori nice to hear from you again! I really need your words of encouragement 🙏

The oncologist does say less risk with TKD but the cancer cells aren’t NIL either. I am also taking Midostaurin with each round of chemo to target the gene mutation. I would feel more comfortable knowing that I’ve done the stem cell transplant but the doctor doesn’t think I will need it unless the MRD rises significantly. I really hate this period of uncertainty!

Yes this is my horse named Aries! I’ve been so grateful to have ridden quite a few times throughout treatment! He did throw me off 3 weeks ago as he is full of energy and that was quite painful. Thankfully I’m now giving my body time to rest after this round!

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Replies to "Hi Lori nice to hear from you again! I really need your words of encouragement 🙏..."

Hi Jamie, Aries is magnificent! I’m so happy you’ve been able to ride during treatment…except for being tossed off! Yikes. But riding just feels like a little normalcy after all you’ve gone through this summer.

Regarding transplant, from everything I’ve been told by my transplant team at Mayo, the ‘cleaner’ you go into your transplant, the better the chances of success. Your BMB will be telling and can help your doctor make good decisions along with you for future treatment. Would the transplant be done locally near you or would you have to travel to another clinic?

But for now, you have much needed time to recoupe after the last round of chemo. For me, it seemed to take longer to recover from each subsequent round of chemo. But the chemo was a life saver and so we do what’s needed to rid our bodies of those defective cells. Please keep me in the loop. I’m here for you any time. And give Arie’s velvet nose a little rub for me. ☺️