← Return to Arrhythmogenic Right Ventricular Cardiomyopathy with MYH6 and RBM20

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@casscond

I will make sure of that - my records are extremely long since I was in a coma due to my cardiac arrest and lacked a diagnosis for 3 years after my SCA so it may have to be on a flashdrive but I will make sure of that! Thank you somuch again

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Replies to "I will make sure of that - my records are extremely long since I was in..."

You are always welcome!

Hello @casscond, I'd like to add my welcome as well.

You have mentioned seeking care at Mayo Clinic in a few different posts. Have you already gone through with the appointment request (http://mayocl.in/1mtmR63)? There are a few different options for requesting an appointment. You can self refer or have a physician refer.

There is also a referring physician portal where your current provider can share: Clinical notes, Discharge notes, Patient itinerary, Radiology and pathology reports, Test results, Surgical summaries and Visit summaries. It is called Care Link (https://carelink.mayoclinic.org/). If you have a physician that is open to helping and giving you a referral, this may be a resource you could share with them if they are willing to take the time to use the portal.

Appointment demand is high, so appointments may be more difficult to come by. However, if you are granted an appointment you can also bring your records with physically to your appointment (CDs, disc drives, etc.). This is always a good option in case something is lost digitally in the process.

@casscond - you are facing a lot of tough medical situations on top of getting close to graduating college. How are you finding ways to cope with what surely seems like a lot of stressful things to manage as a young person?