Evenity

@@bevlevvancouverbc @windyshores I'm suspicious about anything for osteoporosis (or other diagnoses) that has not been thoroughly vetted through unbiased research including clinical trials. I place Marodyne vibration plate in that classification. I also place some supplements in that classification. On the recommendation of my integrative medicine physician at Mayo I subscribe to ConsumerLab.com (not to be confused with Consumer Reports). Consumer Lab combs the research, does their own testing, and provides conclusions on whether the supplement contains what the label indicates and evaluates for cost. They also test food sources. It's the skeptic in me but I figure that some of these products that are recommended without substantial evidence are tjust rying to separate me from my money. Well, don't all products do that but if I'm going to spend my money I want the product to be effective. I listen to my doctors who also listen to me and we arrive at a decision that will work for me.

@windyshores
wind below my wings..thank you

it's only been a week since I saw the rheumatologist
and at least I have time to say to myself: okay
you have made a decision.
I don't expect to be turned down, but things happen.
Whatever. If turned down:
Other decisions/choices will be made.
I notice that now, I am less obsessed with Dr Google.
And have more time to reunite with my
pile of books/reading which has been neglected.
And listen more to classical music.
And try to tickle the ivories...piano - which sounds
more like arm wrestling sometimes. Beginning to
play as a senior can be .....wait...maybe the piano
just needs tuning.

I like this little whatever you call it..
levity....break up the fascia of worry ...of osteo and
whatever else is going on in your life..

If you don't read the news/media - you are un-informed.
If you do read the news/media - you are mis-informed.

I don't know who wrote this but I don't think it's Benjamin Franklin

Hello @rola
Because you say you enjoy Dr MCormick, I found
some in my files:
maybe you have not seen,
one is with Dr McCormick and Irma Jennings who is a Bone Health Coach
the other video is Dr McCormick with Kathy Biase Canada (I think it's audio only)

I got three lumbar fractures in one moment of unwise movement with a DEXA score of -3.7. At -5.2 I would think you are at serious risk. If it were me, I would take it easy until it is safer- stairs, ankle weights, treadmill are not going to bail you out right now, but medications will help a lot (in my experience).

Have you considered Tymlos and then Evenity to extend the time you are on an anabolic? Many doctors seem to be prescribing Evenity these days for severe osteoporosis because it works fast, so perhaps that is the best course, but you could discuss it with your doctor. Tymlos works well for spine and I went from -3.7 to -2.5 in less than 18 months. For you that "excellent gain" of 20% would still leave you in the -4's. Like many of us you will probably be on at least one or two other drugs.

I am not trying to be negative but only give you my experience so you can hopefully avoid it.

I understand the benefits of exercise and diet but please be careful. My fractures are not only painful but disabling in a lot of ways. And I have yet to find a safe physical therapist. My PT does massage only and I am grateful for her caution.

I got three lumbar fractures in one moment of unwise movement with a DEXA score of -3.7. At -5.2 I would think you are at serious risk. If it were me, I would take it easy until it is safer- stairs, ankle weights, treadmill are not going to bail you out right now, but medications will help a lot (in my experience).

Have you considered Tymlos and then Evenity to extend the time you are on an anabolic? Many doctors seem to be prescribing Evenity these days for severe osteoporosis because it works fast, so perhaps that is the best course, but you could discuss it with your doctor. Tymlos works well for spine and I went from -3.7 to -2.5 in less than 18 months. For you that "excellent gain" of 20% would still leave you in the -4's. Like many of us you will probably be on at least one or two other drugs.

I am not trying to be negative but only give you my experience so you can hopefully avoid it.

I understand the benefits of exercise and diet but please be careful. My fractures are not only painful but disabling in a lot of ways. And I have yet to find a safe physical therapist. My PT does massage only and I am grateful for her caution.

Hello @windyshores , I’ve mentioned to you about my debilitating back pain and fractures in my spine. I know you were in a lot of back pain too. I had my 4th Evenity shot a couple days ago. It was unusually painful and my back pain increased significantly. Today I started having very strange pain on both sides of my middle back. Not sure if this is related to fractures or muscle pain. Have you ever experienced pain traveling from lower to middle and to the sides of your back? What medication you used for pain? I was on Tramadol but stopped working. My pain doctor suggested to try nerve ablation L5, L4,L3 and also to try muscle relaxers.I hoping you can give me some advice I am new to this and don’t know what to do. My endocrinologist bagging me to stay on Evenity. I did blood test for CTX it went from 647 to 332. She thinks this is a good sign. I am not sure why I feel worse.

@sunny65 are you the one who wrote me about fractures? I started to respond and then lost it....

After fractures the muscles are dealing with a shorter spine and I think of them as confused! After the fracture stabilizes, a lot of the pain is from muscles. I have baclofen and clonazepam but use them sparingly. I did PT massage- I was lucky to find a good one. Tai chi helps.

Evenity side effects for me were neurological (sensations). Dr. McCormick told me that 40% of his patients on Evenity have joint pain. You can read about the role of sclerostin (which Evenity inhibits) in joints and throughout the body. But people seem to have a lot of improvement on it.

Ask your doctor (or read "Great Bones' by McCormick and watch Dr. Ben Leder's You tube video "Combining and Sequential Approaches to Osteoporosis" about whether the 4 months you have done means the anabolic bone growing phase is over. There is a study using Reclast after 6 months of Evenity vs 12 months of Evenity because after 6 months Evenity, like Reclast, is anti-resorptive. So maybe it is okay to stop at 6 months! I hope your doctor can answer that.

@missy61 People don't seem to do Tymlos after Evenity that much but you could ask. Some do Prolia (preferably 1-3 shots) and then Reclast. Maybe you will do well enough on Evenity that you can just go on the "Lock in" with Reclast.

My fractures are T4, T6, T11, T12 (from a traumatic fall 2006), then L1, L2, L4 (from an unwise movement). Not fun.

Dear @windyshores , thank you for replying. The first 2 shots of Evenity were ok. My back pain never left me, but was somewhat manageable with Tramadol. However, after 3rd shot my back pain was so bad that I ended in emergency room . After 4th - last week my lower back pain increased dramatically again. I talk with endocrinologist and she wants me to keep pushing through because she seen improvement in CTX test.
Also she told me that she don’t mind to switch me to Tymlos. I am so confused because I don’t know if on Tymlos I still have this severe back pain. You’ve mentioned that your back pain improved after 3 months. My question is : did you feel pain lessened when you started Tymlos? Or just in general after 3 months. My back pain is so severe for 6 months now and doesn’t stop even at night . I still make myself go for a short walks and trying not to give up. I never been in more pain in my life. My pain doctor offered to try to do nerve ablation. So, I agreed because I don’t know what else to do. My doctor increased dose of Tramadol and even this don’t give me much relief.Should I still try to stay on Evenity for another 2 months or try to switch to Tymlos at least for one year. My DXA test showed severe osteoporosis That was a year ago. I am going for another one shortly and see if I have any improvement after 4 shots of Evenity. Thank you for any advice.