What should I know before starting Evenity?

@@bevlevvancouverbc @windyshores I'm suspicious about anything for osteoporosis (or other diagnoses) that has not been thoroughly vetted through unbiased research including clinical trials. I place Marodyne vibration plate in that classification. I also place some supplements in that classification. On the recommendation of my integrative medicine physician at Mayo I subscribe to ConsumerLab.com (not to be confused with Consumer Reports). Consumer Lab combs the research, does their own testing, and provides conclusions on whether the supplement contains what the label indicates and evaluates for cost. They also test food sources. It's the skeptic in me but I figure that some of these products that are recommended without substantial evidence are tjust rying to separate me from my money. Well, don't all products do that but if I'm going to spend my money I want the product to be effective. I listen to my doctors who also listen to me and we arrive at a decision that will work for me.

@windyshores
wind below my wings..thank you

it's only been a week since I saw the rheumatologist
and at least I have time to say to myself: okay
you have made a decision.
I don't expect to be turned down, but things happen.
Whatever. If turned down:
Other decisions/choices will be made.
I notice that now, I am less obsessed with Dr Google.
And have more time to reunite with my
pile of books/reading which has been neglected.
And listen more to classical music.
And try to tickle the ivories...piano - which sounds
more like arm wrestling sometimes. Beginning to
play as a senior can be .....wait...maybe the piano
just needs tuning.

I like this little whatever you call it..
levity....break up the fascia of worry ...of osteo and
whatever else is going on in your life..

If you don't read the news/media - you are un-informed.
If you do read the news/media - you are mis-informed.

I don't know who wrote this but I don't think it's Benjamin Franklin

Hello @rola
Because you say you enjoy Dr MCormick, I found
some in my files:
maybe you have not seen,
one is with Dr McCormick and Irma Jennings who is a Bone Health Coach
the other video is Dr McCormick with Kathy Biase Canada (I think it's audio only)

I am 66 years old and have been on Reclast for two years with some improvement in my scores, although the second year my spine score went down. My endocrinologist at Mayo Clinic discussed Evenity and Tymlos and I think I am going to try Evenity since it is one year and convenient to go once a month to the clinic to get the injections. I had concerns about the black box warnings regarding heart attack and stroke, but she reassured me that she has not heard of anyone experiencing this. I also have an appointment with my cardiologist to see what he says before I start. I don’t know what else to do and yes, I’m very nervous about taking this drug, but I know it’s supposed to give me big gains in my spine where I need it the most. Any additional advice?

I got three lumbar fractures in one moment of unwise movement with a DEXA score of -3.7. At -5.2 I would think you are at serious risk. If it were me, I would take it easy until it is safer- stairs, ankle weights, treadmill are not going to bail you out right now, but medications will help a lot (in my experience).

Have you considered Tymlos and then Evenity to extend the time you are on an anabolic? Many doctors seem to be prescribing Evenity these days for severe osteoporosis because it works fast, so perhaps that is the best course, but you could discuss it with your doctor. Tymlos works well for spine and I went from -3.7 to -2.5 in less than 18 months. For you that "excellent gain" of 20% would still leave you in the -4's. Like many of us you will probably be on at least one or two other drugs.

I am not trying to be negative but only give you my experience so you can hopefully avoid it.

I understand the benefits of exercise and diet but please be careful. My fractures are not only painful but disabling in a lot of ways. And I have yet to find a safe physical therapist. My PT does massage only and I am grateful for her caution.

I got three lumbar fractures in one moment of unwise movement with a DEXA score of -3.7. At -5.2 I would think you are at serious risk. If it were me, I would take it easy until it is safer- stairs, ankle weights, treadmill are not going to bail you out right now, but medications will help a lot (in my experience).

Have you considered Tymlos and then Evenity to extend the time you are on an anabolic? Many doctors seem to be prescribing Evenity these days for severe osteoporosis because it works fast, so perhaps that is the best course, but you could discuss it with your doctor. Tymlos works well for spine and I went from -3.7 to -2.5 in less than 18 months. For you that "excellent gain" of 20% would still leave you in the -4's. Like many of us you will probably be on at least one or two other drugs.

I am not trying to be negative but only give you my experience so you can hopefully avoid it.

I understand the benefits of exercise and diet but please be careful. My fractures are not only painful but disabling in a lot of ways. And I have yet to find a safe physical therapist. My PT does massage only and I am grateful for her caution.

Hello @windyshores , I’ve mentioned to you about my debilitating back pain and fractures in my spine. I know you were in a lot of back pain too. I had my 4th Evenity shot a couple days ago. It was unusually painful and my back pain increased significantly. Today I started having very strange pain on both sides of my middle back. Not sure if this is related to fractures or muscle pain. Have you ever experienced pain traveling from lower to middle and to the sides of your back? What medication you used for pain? I was on Tramadol but stopped working. My pain doctor suggested to try nerve ablation L5, L4,L3 and also to try muscle relaxers.I hoping you can give me some advice I am new to this and don’t know what to do. My endocrinologist bagging me to stay on Evenity. I did blood test for CTX it went from 647 to 332. She thinks this is a good sign. I am not sure why I feel worse.