Thank you for your response…as of today I called about the authorization of my Pet Scan.. denied due to not enough previous testing done that requires a Pet Scan.. had a 24 urine test which showed elevated levels and Cat Scans/with contrast of the chest and abdomen..am waiting for the next step..very frustrating!
Hi there! Did they do the ACC test with your 24hr urine? I was incidentally diagnosed with adrenal nodule in 10/2023 and last CT this year 7/2024 it remained stable in size. My Endo ordered 24hr urine test this year 8/2024 and did an ACC testing that my insurance didn't cover (it's quite a bit) and i wasn't informed that they will performed this test, estimate were not provided for me. Anyway, my next visit is next year (per Endo order) this time a PET Scan from Skull to thigh. I have had 3 CT's from 10/2023 - present date.
Good morning!
Has anyone had an Adrenal Cortical Carcinoma ACC test done with your 24hr urine test? Why is this test necessary? If is it necessary for someone with exceedingly small nodule in one adrenal glands. My endo ordered this test, without explaining and informing me that my insurance may not cover it. I have done multiple urine tests with Metanephrine slightly elevated.
The ACC test was not covered by my insurance as it was reported as clinical risk and integrated clinical risk for adrenal cortical carcinoma, adenoma, or other adrenal malignancy.
Has anyone had this test done with their 24hr urine sample test?
Hi @vkoonz, blood tests and urinalysis are used to check hormone levels. Your endocrinologist might get a 24-hour urine test if you’ve done other kidney function tests — like urinalysis or blood tests — and they need more information about how your kidneys are working. The results can help your doctor diagnose suspected cancer or evaluate it.
Have you been diagnosed with adrenal cortical carcinoma or are you in the diagnostic phase? How are you doing?
Hi @vkoonz, blood tests and urinalysis are used to check hormone levels. Your endocrinologist might get a 24-hour urine test if you’ve done other kidney function tests — like urinalysis or blood tests — and they need more information about how your kidneys are working. The results can help your doctor diagnose suspected cancer or evaluate it.
Have you been diagnosed with adrenal cortical carcinoma or are you in the diagnostic phase? How are you doing?
Than you Colleen,
I was not diagnosed with Adrenal Cortical Carcinoma. The reason for getting the 24hr urine test and blood work was to check my metanephrine, normetanephrine, creatinine and Catecholamine. I have slightly elevated Metanephrine but thats all. Currently no symptoms of Pheo. I was thinking the ACC test was not necessary in my case. Also, not informing me of the cost or what my insurance will cover or what not.
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Hi there! Did they do the ACC test with your 24hr urine? I was incidentally diagnosed with adrenal nodule in 10/2023 and last CT this year 7/2024 it remained stable in size. My Endo ordered 24hr urine test this year 8/2024 and did an ACC testing that my insurance didn't cover (it's quite a bit) and i wasn't informed that they will performed this test, estimate were not provided for me. Anyway, my next visit is next year (per Endo order) this time a PET Scan from Skull to thigh. I have had 3 CT's from 10/2023 - present date.
Hi @vkoonz, blood tests and urinalysis are used to check hormone levels. Your endocrinologist might get a 24-hour urine test if you’ve done other kidney function tests — like urinalysis or blood tests — and they need more information about how your kidneys are working. The results can help your doctor diagnose suspected cancer or evaluate it.
Have you been diagnosed with adrenal cortical carcinoma or are you in the diagnostic phase? How are you doing?
Than you Colleen,
I was not diagnosed with Adrenal Cortical Carcinoma. The reason for getting the 24hr urine test and blood work was to check my metanephrine, normetanephrine, creatinine and Catecholamine. I have slightly elevated Metanephrine but thats all. Currently no symptoms of Pheo. I was thinking the ACC test was not necessary in my case. Also, not informing me of the cost or what my insurance will cover or what not.