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Anyone else out there with extremely high lipoprotein (a)?

Heart & Blood Health | Last Active: Dec 5 1:31pm | Replies (178)
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@hsminc

My husband had a Lp(a) of 159 - three times the upper limit of normal. We believe this contributed to his ascending aortic aneurysm. Although his elevated lp(a) was discovered in 2003, nothing was recommended except to keep his LDL at 70. He did that until the aneurysm was noted. Then he was referred to a coronary artery disease specialist. That doctor put him on Repatha. He was also on Zocor but his values got too low in the eyes of his doctor. So he no longer takes .Zocor, just Repatha. His Lp(a) is now about 90 and his LDL is 50. His doctor likes these numbers better than the LDL of 16.

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Replies to "My husband had a Lp(a) of 159 - three times the upper limit of normal. We..."
mayoconnectuser1 | @mayoconnectuser1 | Sep 28 8:08am

hsminc,

How were his other lipids?

Given what you noted, and broad recommendation, was he on statins at some point?

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valcie | @valcie | Sep 30 3:10am

Its very good to hear that Repatha worked for him.

I had a second blood test for Lp(a) recently as I thought the first test
may have been wrong as it was so high at 559.9 nmol/l but the second was even higher 591.3 nmol/l. My LDL C is not really high and other lipids are in normal range.

My GP has referred me to to a new clinic in my area that specializes in Familial Hypercholesterolemia and Lp(a). I'm hoping to get into a Clinical Trial or Repatha. I've been told that Repatha can reduce the Lp(a) by 20-30% but the drugs in late stage trials can reduce levels by 90+%.

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