1. < Prostate Cancer

Enzalutamide (Xtandi): Anyone have experience with this drug?

Posted by dakotarunner @dakotarunner, Feb 3, 2023

RP in 2004. Over the past few years PSA has been rising. On Lupron for the last 12+ months. Bone scan in Jan of 2022 indicated cancer has spread to pelvic area bones. Bone scan in Jan of 2023 indicates it is slowly spr3eading.Dr. is putting me on Xtandi next week. I am curious if anyone out there has been on this drug. Sounds like I will stay on Lupron also. Before the Lupron started a year ago my PSA was 67. believe II may be having problems again with Pancreatic cancer (Whipple in early 2019). Regardless, life is good. I have complete trust in my Oncologist.

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reets70 | @reets70 | Sep 27 6:00am

My husband has been on Xtandi for three years and his PSA is still below 1. He has had Prostate Cancer for 30 years and since taking this drug, he has never been better! Side effects are minor, but the long lasting benefits are worth it.

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melcanada | @melcanada | Sep 27 7:16am
In reply to @charlesinbaltimore "Not about that specific drug, but a class concern. Any more information out there: Neuroendocrin cancer..." + (show)
@charlesinbaltimore

Not about that specific drug, but a class concern. Any more information out there:
Neuroendocrin cancer
A warning. At the latest PCRI conference, they announced that they have found that being on one of the lutamides (Enzalutamide, apalutamide, Darolutamide) for four years can cause small cell neuroendocrine cancer. a cancer that is pretty much untreatable and leads to death within a year or less.

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Only on Xtandi 9 mos them Xofigio Radium 223 and now chemo pain bones/muscles

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amee | @amee | Sep 27 9:21pm
In reply to @reets70 "My husband has been on Xtandi for three years and his PSA is still below 1...." + (show)
@reets70

My husband has been on Xtandi for three years and his PSA is still below 1. He has had Prostate Cancer for 30 years and since taking this drug, he has never been better! Side effects are minor, but the long lasting benefits are worth it.

Jump to this post

With enzalutamide does your husband feel fatigue and weekness for few hours in a day?

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