How many have seen that Australia has upped their warnings on heart issues with Evenity?
https://www.tga.gov.au/news/safety-updates/new-warnings-romosozumab-evenity-cardiovascular-risks

My doc said there was no rush to get on Reclast after Evenity because it takes time for Evenity to mineralize. I assume also, since Evenity keeps CTX down, that we want to make sure the CTX isn't too low when we start the Reclast (or Prolia) but I don't know. Evenity is new, and people finishing Evenity is even newer, so I think we will know more in a few years.

@newenglandtransplant my doc said there was "no rush" to get on Reclast after Evenity because it "takes time to mineralize" but gave me a limit of two months to wait. That's all I know. I waited exactly two months. My doc doesn't do bone markers. My CTX runs kind of low even at baseline which is interesting. It may be affected by kidneys although kidney disease would tend to raise it.

My bone health specialist has recommended I start Evenity as I have osteoporosis & have had a spontaneous spine fracture.
I had bariatric surgery 18 years ago & suffer from malabsorption & despite taking 1,800 mg of liquid calcium citrate concurrently with 15,000 IU of liquid Vitamin D3 (split into 4 doses per day) & we can’t get my calcium levels up in the normal range. Evenity warnings specifically state not to administer to patients with low calcium levels so we keep trying by increasing calcium citrate & D3. I do not want to start Evenity until levels are normal. Has anyone else experienced this problem or can offer any advice? Thanks!

I am in the same boat as you. Very scared to start, but my spine has lot 7% last year.

Thanks for sharing this info.

So I just received my first Evenity injections yesterday. I had no pain or redness, just a lump on one arm that dissipated today. I do have a slightly stuffed up nose and a dull headache. Hopefully that is all I get. The nurse who administered the shots at the Mayo Clinic was very encouraging about this drug and said that everyone seems to do well on it. I am 66 with pretty bad scores. I took Reclast for two years and had some improvement and I’m now on Evenity for a year. I am so hopeful for good results. I feel like a ticking time bomb waiting for that first fracture and I don’t do any of the activities I used to enjoy because I’m afraid of fracturing my spine. My PT I went to said that I didn’t have to worry that much about that, but I’ve read all of these posts and I feel that a lot of the exercises she was having me do (bending from the waist to touch toes, etc) were not good. There is so much conflicting information out there, it’s hard to know what to do. Trying to explain to family that no, I can’t do things or lift grandkids is very heartbreaking because they don’t get it. Anyway, I’m on this journey and will let you know how I do. Also had a ekg and am scheduled for a cadioechogram on Monday to make sure all is good in that area.

Thank you. I feel that if I hadn’t read all these posts, I would not know any information. For one thing I didn’t realize we would have to be on one drug or another forever. I thought when we reached a safe level of bone density that we could stop taking drugs, but from my understanding in these posts is that this is not true. I will never take Prolia, I do know that for sure.

Thank you for all the encouragement! I’m learning as I go, and yes my spine is -4.0 right now, so I’m being really careful. I don’t want to start having spine fractures because once it happens, it’s seems to be impossible to correct and my spine doctor said I have a great spine for someone age 66. But it doesn’t matter if my bone density is so low. I did have my spine decay score up to 3.5 when I finished my first year of Reclast, but my second year on Reclast, it went to 4.0. I’m hoping for great results with Evenity. My vitamin D was also extremely low at 21, so another reason for the problem. I bought the good liquid vitamin D with K2 from Thorne who I trust and I just add 3 drops (3000) to my ok every morning. Hopefully that helps. I know I need to do more and now that the horrible summer is over in AZ, I will be walking a lot. We’ll see how it all works out.

Question: I bought calcium capsules DV Calcium (as DimaCal®
DiCalcium Malate)†
250 mg from Thorne.

I am drinking OJ every morning which has 325 mg of calcium and 2 cups of almond milk at 350 each=750 mg. For a total of 1075 each day. I’m not sure that I even need to take the supplement, especially since I’m probably getting more calcium in bits and pieces through my other meals. Mayo Clinic Endo said 1000 to 1200 daily. Advice?
Also, when should I get these levels checked? I don’t see her for another year.