Has anyone had a recurrance of endometrial cancer to lung?

Posted by gaylepc @gaylepc, Sep 23 9:32am

had stage 1a grade 1 endometrial cancer 9 years ago. I had a full radical hysterectomy, and the Dr.s felt there was virtually no chance it would return. No chemo or radiation was suggested or offered. Nine years later I started to cough blood and after loads of tests, it has been determined that I have an endometrail tumor in my lung. It is not operable due to the position it is in, so they are looking at radiation, if my lungs can take it ( I have moderate emphysema), and chemo. I have been told it is not curable but treatable, and the impression I have at this point from every Dr. that is involved is that I likely have years to live, but will always be a cancer patient.

Is there anyone here who has been through this, or is livin with a similar diagnosis? I am scared, sad, and angry all at the same time. This was not supposed to come back.

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

gynosaur42 | @gynosaur42 | Sep 25 5:11pm

Absolutely!!! It sounds as if you have managed (in spite of the shock and horror) incredibly well and your team sounds excellent. I do not want, in any way, for you to think that my sister's outcome predicts yours. I work to tell myself that for me, too. I am in so much of a better position to care for myself than, unfortunately, she was. I hesitated to write because I did not want to frighten you. I wanted you (and others reading) to know that your experience is not a one-off, though. My experience made me learn that I had to stay vigilant (with, as Helen so brilliantly wrote, a plan, optimism and hope).

Helen, Volunteer Mentor | @naturegirl5 | Sep 25 7:34pm

In reply to @gaylepc "The pulmonologist had no new information, just went over my lung function tests which provided nothng..." + (show)

@gaylepc September 30 (Monday) is only a few days away. I hope for you that the radiation oncologist will be discussing a treatment plan. Like you I am not good at "hurry up and wait". I will share that once treatment plans were recommended and then in place I was far less anxious.

gaylepc | @gaylepc | Sep 26 6:35am

In reply to @gynosaur42 "Absolutely!!! It sounds as if you have managed (in spite of the shock and horror) incredibly..." + (show)

I did appreciate your story. I know I went into action quickly, I can only hope that makes a difference. I am not ready to check out yet!

gaylepc | @gaylepc | Sep 26 6:37am

In reply to @naturegirl5 "@gaylepc September 30 (Monday) is only a few days away. I hope for you that the..." + (show)

I suspect that will be the case for me. The lack of action just makes me live in fear, and that is not healthy for me. Hoping that a treatment plan comes together in this next week.

gaylepc | @gaylepc | Sep 30 4:39pm

I just got back from my appointment with Dr. Volpp the Radiologist/Onchologist and I can have radiation!! Even better than that, he thinks he can get it all, which bodes really well for a long term survival, he even mentioned "possible cure". He was wonderful and I have real, honest to goodness HOPE, not only for an extended life, but a reasonably healed and long life.
I still have COPD, which I would not have known about if it hadn't been for all this, so maybe that's a blessing as it can be addressed properly.
Dr. Volpp does want me to have a regular Oncologist for follow up, and has referred me to a really good one that he works with. Dr Bahador, my GYN/Onchologist will be a consultant for possible chemo if they feel I need it.
This could not have been better news, and I haven't been able to stop smiling since!!

Helen, Volunteer Mentor | @naturegirl5 | Sep 30 6:13pm

@gaylepc Oh, wow. I'm smiling too as I read this. Thank you so much for coming back and announcing this right here.

This is such fantastic news and does provide great, big, Hope. Isn't it wonderful to know that you are on the action path and that you have such a fantastic cancer team to work with? ❤️😀🥳

gaylepc | @gaylepc | Oct 1 8:55am

In reply to @naturegirl5 "@gaylepc Oh, wow. I'm smiling too as I read this. Thank you so much for coming..." + (show)

The difference is incredible. I cannot stop smiling, I know I am going to make it now. I hope it helps others to remember to hang on to that hope, all is not lost!!

Helen, Volunteer Mentor | @naturegirl5 | Oct 1 10:10am

In reply to @gaylepc "The difference is incredible. I cannot stop smiling, I know I am going to make it..." + (show)

Yes!! When I first heard the word "cancer" all I could think about was death. Then I met with my gyn-oncologist at Mayo Clinic and realized that cancer means a treatment plan with confidence in my cancer care team.

May I ask that you send your message out by replies to our members who would benefit from the reminder about Hope?

gaylepc | @gaylepc | Oct 1 11:53am

In reply to @naturegirl5 "Yes!! When I first heard the word "cancer" all I could think about was death. Then..." + (show)

I'd be happy to, I am just not sure how to do that. Is there a specific thread I should post it to or something?

I am not the most computer literate on this board.

Helen, Volunteer Mentor | @naturegirl5 | Oct 1 1:57pm

In reply to @gaylepc "I'd be happy to, I am just not sure how to do that. Is there a..." + (show)

@gaylepc No, no specific thread. Just whenever you read someone else's post here and want to provide a supportive message. I thought what you posted above was lovely and I know how much it will mean to others.

When do you start your treatment?

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