Hi @pixiesusan
You have some very good questions that deserve answers. Both CCUS and MDS are very complex conditions. There are many factors that are considered as part of diagnosis, treatment and ultimate prognosis. Everyone’s experience with this is different. I find it comforting to go to my appointments with my significant other. This can be a source of comfort. Also, a support person can often pick up things you may not have heard. Have you asked your hematologist to explain your specific mutations and treatment plan to you in laymen’s terms?