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Has anyone had Paget's disease of the vulva?

Gynecologic Cancers | Last Active: Sep 27 8:18am | Replies (142)
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@amapola1987

Thank you for your reply.
I am in Iran. The medical services here are more than in the entire region, but I can travel for medical treatment and go to another country that has more expertise in Paget disease. I want to prevent the disease from returning as soon as possible.

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Replies to "Thank you for your reply. I am in Iran. The medical services here are more than..."
Colleen Young, Connect Director | @colleenyoung | Sep 24 2:38pm

@amapola1987, if you would like to seek a second opinion at Mayo Clinic, you can submit a request here: http://mayocl.in/1mtmR63

I'm tagging @chaka67 @ameliae @juju67 @lrcg @ima1survivor @janeellenmc @victoria15 @biancasmythe @lydiamae @bijou68 @joyceinil to bring them back into the discussion. I'm sure you've read their stories in the previous comments and the treatment options they chose.

@amapola1987, I can understand your concern about recurrence after already having had surgery for extramammary Paget's disease twice in the last four years. Has it returned? What treatment options are you exploring?

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