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What is wrong with me?!

Fibromyalgia | Last Active: Sep 28 12:20pm | Replies (16)

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@emo

Thanks for sharing! I knew I had read it somewhere and I thought it was in a different online support group I’m part of.

I’m sorry it’s happening to you but glad you’re on a direction to get some answers.

Wow, my first thought was, “There’s no test for fibromyalgia…” and I googled it and you’re right—it’s new! I wonder if it’s being used and/or covered by insurance 🤔. It seems to have been introduced a few years ago. But I find it odd this didn’t come up at all in a Mayo evaluation I had in 2023 in a clinic that admittedly diagnoses a lot of fibromyalgia as a co-occurring condition. Weird. Thanks for sharing!

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Replies to "Thanks for sharing! I knew I had read it somewhere and I thought it was in..."

What was your experience going to the Mayo (Rochester?) for fibromyalgia?

The test is not covered by insurance but is worth every single penny to know My neurologist quoted me about $ 1,100.00.

I'm still awaiting my results for the the underlying cause of the EM. They've only ruled out Stiff Persons and early Dementia. It is unacceptable how long it takes to diagnose these conditions. 24 years I've been trying to get answers. I got lucky enough to get to see my neurologist in mid severe flare. He saw it first hand. Never give up!!!!