Anyone else have a Redundant / Tortuous Colon?

Posted by onaquest @onaquest, Nov 7, 2018

Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.

My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne

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Profile picture for researchmaven @researchmaven

Hi Missuezq, I replied to your private message on this -- ResearchMaven

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I appreciate it!!

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Profile picture for farmersmith @farmersmith

Hi cdeebar,
Best of luck cdeebar keep at finding the keys for your regularity!
Disclaimer: This is only my experience going natural. I have used organic, integrative, functional, holistic Naturopathic doctor's advice along with my MD’s since the early 1980's. There is science in alternatives too. Because I work closely with my ND, he told me to study the Migrating Motor Complex and Osmotic Gradient and he bet that I would find what worked for me. How to keep a longer than normal pipe with consistent moisture…. My ND also said because my condition was physical and I was born with it, attention would be needed for it from now on. Working on keeping stress down is very important too.
I tried laxatives and they are not consistent and have side effects like bloating, etc. All say for occasional use. They disrupt the system if take continuously. I liked a response from a co-redundant colon person: “It’s physical” so regular constipation suggestions may not work. Don’t give up because it took me 4 months to feel I could depend on being regular. It is worth going natural.
Last Dec the doc had me do non sedated colonoscopy. He went through my colon as I watched on TV. I had had a baby years ago (natural and could stand pain) so figured I could stand it – it was no big deal. Most people in world don't get put out. Very interesting and it helped allow the scope to get through better because I relaxed. No wonder I had been constipation on and off starting in my teens. I’m now in my early 70’s.
OptiMag and K2+ Potassium are great supps. I take them when I go to bed and once when I get up to pee. I include prunes/prune juice, winter squash, sweet potatoes, rhubarb etc in my diet. I eat cups of steamed vegetables each day. I like to grind 2T chia, 1 T sesame seeds and 2 T flax seeds, then soak in prune juice overnight. I add a T of carob now since it can help regularity. Take half in the morning and half at night. Throw sugar out along with processed and refined foods. Look up foods and drinks that constipate and give them up. Drink lot of water starting with a quart of hot water in the morning - boys scouts. I drink warmed up diluted chicken broth at times too. It is soothing to my stomach. Coffee and Smooth Move are my backups. I don't like coffee and never have drunk it much but it usually works for me in a pinch. Thankfully I only need coffee a few times a month.
Check out helpful research of biological processes that take place in our gut:
- Migrating Motor complex which is the electroactivity in the GI tract during meals and fasting
- Osmotic gradient. If too much water is pulled into the colon, diarrhea results. If not enough water is pulled into the colon constipation results. Balance of minerals is important. Magnesium, potassium and sodium brings water into the colon. I have found balancing these help prevent constipation. I have to watch my calcium intake because it tends to encourage constipation. Calcium carbonate seems to be the most constipating. I depend on blood work from time to time to make sure my minerals are balanced. Good luck, @farmersmith

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@bethyh79 Good morning,
I had another Mayo person say my ideas were helpful but complex. I explained that it took 4 months for me to figure out the keys to make my system regular. So don't give up and best of luck! I drank a cup and half of coffee to make sure I was regular this am since I leave the farm to go to town for the day. Great to have coffee as a back up. Hadn't needed it in a few weeks. Fresh rhubarb and grapes from our garden was helpful too.
@farmersmith

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Profile picture for misssuezq @misssuezq

I have a redundant colon with chronic constipation. As many of you experience just when you figure out a way to help your constipation, it stops working. I’m looking for a new way and want to try magnesium but wasn’t sure if others on here recommend magnesium or magnesium citrate. I welcome your comments.

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Mag citrate is what’s usually used to clear out before a colonoscopy!

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Profile picture for cantab @cantab

Mag citrate is what’s usually used to clear out before a colonoscopy!

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Oh right that nasty stuff!!! Thank you

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Profile picture for misssuezq @misssuezq

I have a redundant colon with chronic constipation. As many of you experience just when you figure out a way to help your constipation, it stops working. I’m looking for a new way and want to try magnesium but wasn’t sure if others on here recommend magnesium or magnesium citrate. I welcome your comments.

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Magnesium citrate powder in water or baking soda will work. If it doesn't in a few hours, take more.

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Profile picture for misssuezq @misssuezq

I have a redundant colon with chronic constipation. As many of you experience just when you figure out a way to help your constipation, it stops working. I’m looking for a new way and want to try magnesium but wasn’t sure if others on here recommend magnesium or magnesium citrate. I welcome your comments.

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It's very strong......Stay close to home if you use it!

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Profile picture for misssuezq @misssuezq

I have a redundant colon with chronic constipation. As many of you experience just when you figure out a way to help your constipation, it stops working. I’m looking for a new way and want to try magnesium but wasn’t sure if others on here recommend magnesium or magnesium citrate. I welcome your comments.

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I was using mag citrate liquid at night successfully after years of not finding long lasting solutions to my cronic constipation but my blood pressure was going too low on the citrate. I take BP meds and didn't want to adjust those, so stopped mag citrate. Still looking for the best solution for me.

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Profile picture for misssuezq @misssuezq

I have a redundant colon with chronic constipation. As many of you experience just when you figure out a way to help your constipation, it stops working. I’m looking for a new way and want to try magnesium but wasn’t sure if others on here recommend magnesium or magnesium citrate. I welcome your comments.

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Try a brew of slipper elm inner bark powder dissolved in hot water before a meal, especially one with harder to digest foods (raw produce, meat/fish). The inner bark portion adds slip. It may be a game changer. I was just using it before an easy-to-digest breakfast. Now I drink this "tea" before my three main meals. I am only 2-3 day into this new routine but amazed how much better my system works. I have a severely redundant colon too (but not torturous). It's definitely a specialty product, and since Covid, seems to only have a few suppliers.

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Profile picture for researchmaven @researchmaven

Try a brew of slipper elm inner bark powder dissolved in hot water before a meal, especially one with harder to digest foods (raw produce, meat/fish). The inner bark portion adds slip. It may be a game changer. I was just using it before an easy-to-digest breakfast. Now I drink this "tea" before my three main meals. I am only 2-3 day into this new routine but amazed how much better my system works. I have a severely redundant colon too (but not torturous). It's definitely a specialty product, and since Covid, seems to only have a few suppliers.

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You have a severe redundant colon but not torturous? Please explain the difference. Thanks!

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Profile picture for researchmaven @researchmaven

Relaxation therapy for my redundant colon, as anxiety is one of the things that cause my guts to "twist" and bloat. Also, massage for constipation for bloat too. Sleeping on my left side (for gravity to move things along), avoiding dense foods (dense bread/meat/etc.). Focusing on liquidy soups and hot cereals. Little to no meat.

I have made a large number of adjustments. If all that stops working I just don't know what else would do the trick.

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What kind of relaxation therapy? Do you massage yourself?

I also have leaky gut syndrome, can't eat dairy or yogurt or goat or sheep milk products, can't eat gluten, soy or rice, and took a special blood test in which I found that I cannot process many different foods. Oh, I haven't eaten meat or poultry for 61 years, and I don't eat shellfish. Good thing that I am not a foodie!

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