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Fibromyalgia | Last Active: Sep 28 12:20pm | Replies (16)
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This is a rare condition, but recently I heard of someone who was getting a workup for a condition called Erythromelalgia. It causes burning pain, can have sudden onset and cause purple color to hands and feet, if you might want to see if that sounds like what you’re experiencing.
Might be out of left field, but thought I’d mention it. Raynaud’s is more common and could be caused by a different vascular or rheumatological condition.
Replies to "This is a rare condition, but recently I heard of someone who was getting a workup..."
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Hello, it is me that is being treated for Erythromelalgia right now! There is no test for this condition. It is diagnosed by symptoms, appearance (red skin), and warmth to the touch. However everybody presents differently. Right now I have no burning sensation yet but everything from my knees down are very swollen and red. I've had chronic swelling for years that comes and goes every summer and sever pain on tops of feet for a couple years.
Just thought I'd share my experience in case it rings any bells with you. oh, and it can affect Limbs (typically feet and/or hands but can affect entire limbs) and face as well I read.
Anyway I'm assuming you've been to a foot dr and have had MRI's?
Does your pain move all around your body? I have Fibro as well. Had chronic pain for 24 years. drs always blamed my spine. until JUST 2 weeks ago when I flared and the EM flared as well. I understand you frustration. There IS a blood test for Fibro. It's not covered by insurance though. You can ask your neurologist for it. I don't know if it's new or what but I was NEVER told of this test.
I hope maybe some of this helped! Good luck!