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Mucous Membrane Pemphigoid: Any medications that work for you?

Posted by audreyh @audreyh, Sep 19 2:26pm

I have MMP in my mouth, nose and eyes. I have problems taking Azatioprine, Mycophenalate, and Methatrexate. I have recently been on Dapsone but cannot take the higher doses. Are there other medication suggestions?

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Mentor
Becky, Volunteer Mentor | @becsbuddy | Sep 19 7:42pm

@audreyh Welcome! How awful to have mucous membrane pemphigoid in your mouth, nose, and eyes. Did the treatments you mentioned not work for you and the side effects were a real problem? What drugs is your doctor encouraging now? There are so many discussions on Connect that I’ll let you pick the ones that might be interesting. Click on this https://connect.mayoclinic.org/group/autoimmune-diseases/ Then enter mucous membrane pemphigoid in the search box and voila! So many choices.
You’ve been in the discussions before so I’m sure other members will jump in to answer you. Can you tell us how long you have had MMP?

REPLY
Moderator
Justin McClanahan, Moderator | @JustinMcClanahan | Sep 23 9:16am

Hello @audreyh, I'd like to invite @sando, @jimhaz, @griffin1120 and @terrydclaar to this discussion to share their experiences with mucous membrane pemphigoid.

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