1. < Post-COVID Recovery & COVID-19

Newest and best long covid recovery treatments?

Posted by lorivwebb @lorivwebb, Sep 10 3:21pm

Has anyone had any substantial or helpful treatment for severe long covid?
Interested to hear any novel therapies being explored. At this point, I am so tired and now have pots and ME with significant symptoms for 2 years.

Looking for some hopeful ideas.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

lorivwebb | @lorivwebb | Sep 22 3:19pm
In reply to @kellysmail2016 "These articles were beneficial to me. At least understanding it is not just me. See what..." + (show)
@kellysmail2016

These articles were beneficial to me. At least understanding it is not just me. See what you all think.

HERE IS ONE:
https://www.npr.org/sections/health-shots/2024/01/09/1223077307/long-covid-exercise-post-exertional-malaise-mitochondria

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Does the link to autonomic rehab work for you?

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1 reply
lorivwebb | @lorivwebb | Sep 22 3:21pm
In reply to @kellysmail2016 "I use Metropol. I take a 50 mg time released tab and have 25 mg one..." + (show)
@kellysmail2016

I use Metropol. I take a 50 mg time released tab and have 25 mg one as well I use if it start to act up prior to retaking my 50 mg again. That is daily. I have SVT. (Super ventricular technic Cardia). Not sure if that was spelled correctly. I have had this since 2008. Been by ambulance to ER about 6 to 8 times. They have to restart my heart with an injection or paddles to get it back to its normal rhythm. That’s always fun. The Metropolol helps but I still get quick spells daily. I can typically stop them myself. Have they told you about holding your breath and pushing down??

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Oh gosh, that is scary. Yes, I know all of the tricks. Nothing has been very helpful for me.

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2 replies
kellysmail2016 | @kellysmail2016 | Sep 22 3:37pm
In reply to @lorivwebb "Oh gosh, that is scary. Yes, I know all of the tricks. Nothing has been very..." + (show)
@lorivwebb

Oh gosh, that is scary. Yes, I know all of the tricks. Nothing has been very helpful for me.

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Sorry to hear that!! Best of luck on finding something. 😊

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kellysmail2016 | @kellysmail2016 | Sep 22 3:38pm
In reply to @lorivwebb "Does the link to autonomic rehab work for you?" + (show)
@lorivwebb

Does the link to autonomic rehab work for you?

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I’m not sure of which you are talking about. One that I posted?

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2 replies
kellysmail2016 | @kellysmail2016 | Sep 22 3:45pm
In reply to @lorivwebb "I hear you and I certainly have my thoughts on this virus and the crimes against..." + (show)
@lorivwebb

I hear you and I certainly have my thoughts on this virus and the crimes against humanity. I’m just trying to focus all of my energy on getting well, but when I do, I’ll be very outspoken on this entire disaster. I cannot believe what has happened to people and how so many are just left to suffer.

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I know. I’m doing the same but I get so mad thinking about how this all was shut off. Left us all to suffer or die. Uggghh. 😖

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lorivwebb | @lorivwebb | Sep 22 3:46pm
In reply to @kellysmail2016 "I’m not sure of which you are talking about. One that I posted?" + (show)
@kellysmail2016

I’m not sure of which you are talking about. One that I posted?

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Sorry lol. My comment made no sense. In the link you posted, there’s another link to autonomic rehab- but it’s not working for me and I was hoping to see what it said. I didn’t know if you had ability to click on it. I can dig further.

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1 reply
kellysmail2016 | @kellysmail2016 | Sep 22 3:52pm
In reply to @lorivwebb "Sorry lol. My comment made no sense. In the link you posted, there’s another link to..." + (show)
@lorivwebb

Sorry lol. My comment made no sense. In the link you posted, there’s another link to autonomic rehab- but it’s not working for me and I was hoping to see what it said. I didn’t know if you had ability to click on it. I can dig further.

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Ahhh. lol. Let me try.

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kellysmail2016 | @kellysmail2016 | Sep 22 4:00pm
In reply to @kellysmail2016 "I’m not sure of which you are talking about. One that I posted?" + (show)
@kellysmail2016

I’m not sure of which you are talking about. One that I posted?

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THIS YOU HAVE TO COPY AND PASTE IN YOUR BROWSER. IF YOU HAVE QUESTIONS ON HOW TO, I CAN HELP

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kellysmail2016 | @kellysmail2016 | Sep 22 4:07pm
In reply to @lorivwebb "It seems this is the med to try. This and nicotine are what most people seem..." + (show)
@lorivwebb

It seems this is the med to try. This and nicotine are what most people seem to say helps them.

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Good to know. I will let LC Dr know!!

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