Cholangiocarcinoma Bile Duct Cancer: Want to share experiences?

Posted by egoodies @egoodies, Aug 14, 2023

Anyone currently battling bile duct cancer? I would love to speak to discuss your experiences. I was just recently diagnosed in June.

Interested in more discussions like this? Go to the Liver Cancer Support Group.

kimia2000 | @kimia2000 | Sep 17 6:18pm

Hi,
I am 67 years old and was diagnosed in January 2023.
Prehillar cholangiocarcinoma stage 3B, unresectable 3 cm tumor.
Went through 16 sessions of 3 drug infusions and 30 sessions of radiation, then, maintenance chemo.
In December 2023, I was approved for living doner liver transplant.
Pre-surgery laparoscopy showed no metastasis to lymph nodes or other organs.
I had a successful 15.1/2 hour surgery in jan 2024. Tough recovery.
Then, 6 months of capecitabine 2000 mg, twice a day to minimize the risk of recurrence.
I am doing well but my oncologist warns me that I have high risk of recurrence.
Mayo data give a %30 chance of recurrence.
I wish everyone the same successful journey that I have had so far.
Optimistic about future .
Thanks

demooretucson | @demooretucson | Sep 22 9:17am

In reply to @kimia2000 "Hi, I am 67 years old and was diagnosed in January 2023. Prehillar cholangiocarcinoma stage 3B,..." + (show)

Kimia2000 -- Thanks for sharing. You're an inspiration.
70% chance of no recurrence.

Dan

kimia2000 | @kimia2000 | Sep 24 7:06am

Thank you

View More View Less

Please sign in or register to post a reply.