Connect
Severe Tortuous & Redundant Colon
I had a colonoscopy for symptoms of unexpected weight loss, severe pain, bloating, early satiety and chronic vomiting with bowel movements. I have had these symptoms for years (15), but they have increased in frequency and severity. The doctor discovered severe tortuosity and redundant colon. He said he had to get help in moving the scope through manually the very tight turns and twists. My question is: What medications have proven successful to management? Best diet? Doctor said it was so bad that surgery may be the best course of action, but they try and avoid that for obvious reasons. Anyone have a success story?
Like
Helpful
HugInterested in more discussions like this? Go to the Digestive Health Support Group.
Connect
abby12,
AH! a person who is as skeptical of "try this, it's fantastic ". I may just try this, I am skeptical 🫤.
ShelleyW
Good luck, I 💯 get your skepticism. If you try it you can just order 60 I think. I only ordered 360 instead of the 1000😉
-
Like -
Helpful -
Hug
1 ReactionThank you!
-
Like -
Helpful -
Hug
1 ReactionI know how you feel and am so sorry. I am hurting really badly right now and just wanted to rest. A heating pad does nothing. I am about ready to beg the doc for a bag. If our intestines weren’t there our suffering would end. Hang in there, and if nothing else try to find peace knowing You are loved.
mharrison01,
I too was up all night with pain, I finally fell asleep for a bit. I wish for you that your heating pad would bring some comfort to you. I have one in every room I might rest in, also in both vehicles with chargers that work in the vehicle.
Rest as best you can. For me, when the pain is out of control I have Valium that helps relax the nerves and muscles. Magnesium is also a muscle relaxer. Use what works best for you. ShelleyW
Thank you soo much!! You don't know how much that means to me!! I really appreciate you and will continue to pray for you!! I'm so grateful to find someone who understands...God bless you!!
-
Like -
Helpful -
Hug
2 ReactionsOh the doctors and their PILLS!!! I just had this scenario with another doctor after a horrible colonoscopy. And I said ..SURGERY...remove this "tortuous part..fix it!!" And my boyfriend (well I'm 70 and been widowed 13 years.. he's my "boyfriend at this age..oh good grief)..said "you gotta fix her,she can't go one this way!!!" So a week later the nurse calls and says he wants an appointment to discuss my meds.. after everything he's seen me go thru and not cry I busted out crying...and told her he said he was referring me to a surgeon..no more pills!!! NO MORE PILLS!!! I lost it (I have PTSD and severe anxiety and panic attacks.. even before this all started).. .People don't realize the trauma that comes with this type of illness.. suffering daily..I finally found a pill Linzess that worked for my IBSC and the DR put a patch on my neck to stop the nausea .. shut my whole system down..now I have to take 3 biscadyls every 3-4 days to clean out.. make me soo sick.. in bed most of the time.. I was a vibrant energetic person.. Sales Rep for over 35 years 1000 miles a week.. now I don't drive..I always had alot of dogs and cats ( have an acre fenced.. they have slowly grown old and passed while I am waiting to be healed..the last one July14th ..he was 13.. I won't get any more until I'm well... this changes everything so drastically..maybe I should tell you all of this..IDK.. I just stopped talking to everyone because they say stuff like" just eat something" .."just get up and go"... still I keep claiming and standing.. I get healed of one thing and get another.. but being in this group means so much to me .. I sure wouldn''t want you to die precious.. I want you to be healed.. and I know you do to..You are so kind ..your encouragement in your comment to me made me cry.. soo sweet..I am going to pray for you.. Proverbs3;4 So thou shall find favor and good understanding in the eyes of God and man...we can both use it... can't we?..I don't know you but I love you and do so wish all the best for you
-
Like -
Helpful -
Hug
1 Reactionstandinginfaith,
I am glad that I was prompted, by my heart, to reply....if it made you feel any better, for even a moment, I am touched.
But, now I am confused...did you have colon resection surgery? Or just got your meds yanked away from you? Did your boyfriend (🤗I totally get, being 70, and having a boyfriend... I was a 30 year old single mom of 3, when 2 yrs after my fabulous divorce, I met and started dating my current hubby, now 35 yrs later we are still happily married. But calling him my boyfriend at 30 yrs old sounded weird 🤪). Back to your boyfriend, did he play a role in getting your meds taken away? I keep my medications on a need to know basis, with everyone. Don't MESS with my meds.
Good night 😴💤 sweet dreams
ShelleyW
-
Like -
Helpful -
Hug
1 ReactionOhhh you touched me...you really did!! Thank you soo much!! You are a blessing!! I am currently debating with my GI..on the surgery is that what it's called .. see I don't know much.. but am soo desperate!! You are also hilarious.."dont mess with my meds"..I love that!! Well I was doing fine on Linzess the the GI put the Scopolamine patch on my neck.. OH NO!!! Gut stop!! ER!! I should have left well enough alone.. nausea is better that plugged up..gee whiz.. so now he had me try IBSrela..$340 copay monthly..(I and I have ChampVA.. Husband was a 100% DAV Vietnam vet) well 3-4 days of those just made me sicker.. so I'm on Trulance .. which doesn't work but doesn't make me sick..and 3 biscadyls every so many days.. I'm really careful what I eat..do 2 Vanilla plant based ensures a day.. and have gone from 98 pounds to 144 (nothing fits now either.. too chubby..) And .. my boyfriend (haha!!) It is wierd..isn't it..lol!! I stopped the shrink from giving me 3 different antidepressants and sometimes four.. he would have been a "friend" to all those "script abusers".. I switched shrinks.. and am only on one at night.. no one messes with my meds either...so I'm taking the Trulance to no avail and bombing myself with biscadyls every so often and waiting for my appointment with my GI first of October.. we live so rural.. I may have to go to a hospital 4 hrs each way.. and my boyfriend doesn't drive in "big towns".. (he's sooo country).. his sister will take me .. I am soo pleased you have a good man and 3 children.. they may not understand.. all about this and it's hard on them..it's hard on my boyfriend..and sometimes we fuss.. but you see.. you have soo much to live for!! And you have brightened my life!!! God wants us well.. I hope you don't mind me saying that.. Jesus died that we might have life and have it abundantly. I want that abundantly (healthy .. satisfied!!) I want you to have that life too!!!I think you're actually quite an amazing person!! Sweet dreams to you!! Nitey nite precious lady!!
standinginfaith,
Well, does this mean we are friends, cuz we are in such friggen much pain and can talk at length about our 💩💩‼️‼️, and somehow still joke about silly stuff as having a "boyfriend " when we are old enough to maybe have kids and maybe have grandkids. Every once in awhile, something or someone (today, that would be YOU), gets me to laugh at myself and my misery and either ROTFLOL🤪or sob myself hysterically 😢 then go take a few Valium to calm myself enough to sit still. I've been so Amitiza, Linzess, now Trulance, none of them performed as promised. I think I may do a trial run, stopping the Trulance for a month and see what happens. I held back extra Linzess, when the money grubbing dr. changed it to Trulance.
Were you given Scopolamine for nausea?? Now that is a first I've heard of that. I find that Phenergan has worked well for nausea for many years. Also I find that Dramamine (motion sickness, OTC) works well too, with an added bonus effect of drowsiness, to try and sleep through the roughest nausea. Migraines add to my nausea too. I don't remember if you said..have you tried using higher doses of miralax? And now I have found that the Metamucil gummies work much better for me than the powder form. I take 3-4 capfuls of miralax and 5 gummies almost every day. They work well together, for me, and I do know that I take high doses. But it beats going to the ER or performing the hellish task of digital removal. The industry tells us never to do this...the industry has never had a huge hard mass of 💩💩 blocking the output process. OMG, I have had to go it 3 times three years ago, I will never allow this to happen again.
What is the IBSrela-$340 copay...a new medication or a new insurance plan?
Watch for another post from me.
ShelleyW
-
Like -
Helpful -
Hug
1 Reaction