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Free light chain ratio in MGUS

Blood Cancers & Disorders | Last Active: Sep 25 8:01am | Replies (20)

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@kayabbott

I was diagnosed with IgA Kappa Free Light Chain MGUS 8 years ago (70 yo woman). My kappa has ramped up from 20 to 320 mg/L, Kappa/Lambda is 32, and IgM is normal range at 77. My neuropathy is mostly loss of feeling in extremities; I deal with that with hobbies, using my hands and feet to increase circulation and dexterity. MGUS is scary, but it is a waiting game. Perhaps that is some of the grieving process, that there isn't much one can do but take care of yourself. ResearchGate has research papers on MGUS. I keep a food log because I have celiac (gluten), and after covid last year am sensitive to legumes, dairy, and NSAIDs. Healthy diet, exercise, occasionally screaming into pillows, taking curcumin (in case that spice helps), and escape into hobbies and interests are all important.

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Replies to "I was diagnosed with IgA Kappa Free Light Chain MGUS 8 years ago (70 yo woman)...."

Good to hear that at 8 years you are still MGUS levels. Good to see your positive attitude which I struggle with.

For what it is worth, remembering that everyone if different, I have only know two other people wha were confirmed to have MGUs. One lived to be 94 and the other to 102. That being so, medical advice given to get on with just living your life, is probably the best possible advice.