Finally relief from peripheral foot neuropathy! (my story)

Posted by cln1812 @cln1812, Jul 18 8:34am

I have had peripheral foot neuropathy for a few years. At first it was just numbness and minor tingling. Then the tingling was so bad, it was like it hit me down to my very core. In December, I had a psychiatric hospitalization for bipolar mania. At that point, I was taken off a lot of the psychiatric meds I had been taking. I developed severe cramping in my feet following the hospitalization. I saw a neurologist who sent me for bloodwork and did an EMG. He found my iron was a bit low along with folic acid. I started taking iron supplements and folic acid. After the EMG, he diagnosed me with peripheral foot neuropathy and a pinched nerve in my neck and minor carpal tunnel syndrome. He came to the conclusion the neuropathy was idiopathic since I don't drink at all and I wasn't diabetic since my A1C was normal.

At that point he put me on gabapentin. I didn't really notice any difference. He add oxycarbazepine and I STILL didn't notice any difference. The foot cramping was especially bad when I lay in bed trying to fall asleep and made it difficult to sleep. I got discouraged I would ever find anything to help.

I tried a lot of different supplements people mention on this site. Still no improvement.

In late spring, I got severely depressed and the neuropathy was a huge part of it. I mean, I could see how people with neuropathy get so depressed they don't want to live anymore. I was at that point. My psychiatrist put me on Cymbalta 30 mg once daily for the depression. The Cymbalta started to help the depression quickly. After the first week, I started to notice maybe a minor improvement in the foot tingling. After a month to 5 weeks, the tingling was entirely gone. But I still had the cramping and that was just as bad as the tingling.

I recently had a round of mania. At which point my psychiatrist added Lamictal (lamotrigine) 200 mg twice a day to my psychiatric meds. Wow! Within 2 weeks the cramping was entirely gone.

I know the most of the literature out there says Lamictal only possibly helps with neuropathy and my neurologist wouldn't prescribe it for me; I got it from my psychiatrist as Lamictal is commonly used to treat bipolar disorder. Lamictal was incidently one of the medications the hospital had taken me off of in December, and that was exactly when the foot cramping began. My neurologist wouldn't prescribe it because of my mental health issues, but I got the picture he would have if I didn't have bipolar and panic disorder.

If you are at the end of your rope with foot neuropathy and your neurologist will prescripe Lamitical for you, it is worth trying. Better yet, if you go to a psychiatrist, see if he will prescribe it. Don't try it without being monitored by a professional doctor, of course.

I still do have the numbness with the neuropathy, but honestly, that is something I can cope with. The tingling and cramping not so much.

I realize this may not work for everyone, but I just wanted to share my story.

Interested in more discussions like this? Go to the Neuropathy Support Group.

@solobeee1

After reading your story I feel you are now drug dependent when you should also be talking about alternatives for your mind like exercise or yoga which works to make you less dependent on drugs. It should certainly be a good alternative to drug dependency.

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I don't think that maybe you understand mental illness as clearly as this person's medical team.

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I'm sorry for all your neuropathy pain, those horrible spasms and your emotional disorders. I can say I feel your pain. I have had RSD/CRPS type 2 for almost 8 years and the foot spasms were nearly killing me. From that condition I developed Gastroparesis and they thought I had a heart issue. I saw a cardiologist that took one year to get an appointment. I am in my 70's and all my life I've had more body parts then you can count rupture or tear, and I also had spasms up under my left ribcage. This doctor handed me a questionnaire and took the time to actually read it. He diagnosed me (Along with the RSD) as having a genetic connective tissue disorder which I have had all my life. Explaining all the needed surgeries for all these injuries that no doctor ever questioned. he also diagnosed my rib pain as a damaged Vagus Nerve. He prescribed me a motions sickness drug that he did research on since 2012. He's helped over 2,000 people. and he put it, it's life changing. Not only did my stomach issues and chest spasms go away I realized my RSD foot spasms are no longer there. It's truly a miracle. I had the choice of taking two every day, but they give me dry mouth. So I carry them with me everywhere. when I feel a stomach cramp or a foot spasm starting I pop one under my tongue and within minutes the spasms never materialize .......the name of the drug is HYOSCYAMINE 0.125MG. Again I use them for Vagal symptoms but it's incredible that they work on RSD/CRPS spasms....

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@sadivari

I'm sorry for all your neuropathy pain, those horrible spasms and your emotional disorders. I can say I feel your pain. I have had RSD/CRPS type 2 for almost 8 years and the foot spasms were nearly killing me. From that condition I developed Gastroparesis and they thought I had a heart issue. I saw a cardiologist that took one year to get an appointment. I am in my 70's and all my life I've had more body parts then you can count rupture or tear, and I also had spasms up under my left ribcage. This doctor handed me a questionnaire and took the time to actually read it. He diagnosed me (Along with the RSD) as having a genetic connective tissue disorder which I have had all my life. Explaining all the needed surgeries for all these injuries that no doctor ever questioned. he also diagnosed my rib pain as a damaged Vagus Nerve. He prescribed me a motions sickness drug that he did research on since 2012. He's helped over 2,000 people. and he put it, it's life changing. Not only did my stomach issues and chest spasms go away I realized my RSD foot spasms are no longer there. It's truly a miracle. I had the choice of taking two every day, but they give me dry mouth. So I carry them with me everywhere. when I feel a stomach cramp or a foot spasm starting I pop one under my tongue and within minutes the spasms never materialize .......the name of the drug is HYOSCYAMINE 0.125MG. Again I use them for Vagal symptoms but it's incredible that they work on RSD/CRPS spasms....

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Do they work on any neuropathic pain you have?

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Thank you so much for sharing your story. What helps one might help another.
My primary Dr Rx cymbals to me and I didn’t give it enough time. I’m going to start back on it and see if it will help me too.
Will let you know.
Mardy

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