1. < Breast Cancer

Anyone have metaplastic squamous cell carcinoma of the breast?

Posted by susan528 @susan528, Jul 6 1:52am

Has anyone been diagnosed with a very rare less than 1% womens breast cancer called Metaplastic Squamous Cells carcinoma?
I have a story to share, a positive one, if there is someone else who has or know someone who has this type of
cancer. I hope to find someone else to share about this. Thank You ladies! 🙏

Interested in more discussions like this? Go to the Breast Cancer Support Group.

mglinkhart | @mglinkhart | Sep 14 8:45am
In reply to @mglinkhart "Capcecitebine was my second to last treatment and I had an issue with my heart do..." + (show)
@mglinkhart

Capcecitebine was my second to last treatment and I had an issue with my heart do they took me off at once. After one three month course of iV chemo I quit treatment with no regrets. I am on palliative care and trying to live out my life to the fullest. I am 73 this is my second round of cancer I have it everywhere. No need to chase the falling star. Just enjoy my family and lots of hugs and kisses. God bless you all. If I could, I would take all the cancer from everyone and bring it with me. XOMaria

Jump to this post

❤️❤️❤️

REPLY
seathink | @seathink | Sep 15 11:36am
In reply to @sues2 "Have you taken capecitebine? I am wondering how bad the side effects are. I read in..." + (show)
@sues2

Have you taken capecitebine? I am wondering how bad the side effects are. I read in the info I was given that they can be worse in older people. I am 78, and my oncologist said that capecitebine might help, but he had no research to confirm this. I hate to give up what may be my short time left to side effects that will keep me out of life as my chemo did, especially if capecitebine will be no help.

Jump to this post

Hi @sues2 I did capecitebine as a younger person and got the hand and foot syndrome bad enough to knock me down to a lower dose, 1 week on and 1 week off. Basically the skin on my hands and feet peeled very badly. I still have issues on my hands two years later.

Another consideration is cost - capecitebine is a pill chemo so usually it is billed on your prescription side. It was $1500 every other week for me to get it through CVS Specialty, since regular pharmacies won't carry it. Luckily for me, my husband is in the union and the plans fought to have it billed through the medical side like all my other chemos. Cost $8.

I am very glad I took it, anything to have more time with my baby, but the prescription side would have bankrupted us.

REPLY
mecha | @mecha | Sep 18 12:16pm

Un abrazo para vos y tu lucidez emocional.

REPLY
cobleigh | @cobleigh | Sep 19 10:34am

Yes, I was diagnosed a year ago.

REPLY
1 reply
cobleigh | @cobleigh | Sep 19 10:39am

I welcome your positive story

REPLY
Moderator
Colleen Young, Connect Director | @colleenyoung | Sep 26 2:31pm
In reply to @cobleigh "Yes, I was diagnosed a year ago." + (show)
@cobleigh

Yes, I was diagnosed a year ago.

Jump to this post

Welcome, @cobleigh. May I ask what type of breast cancer you had? How are you doing now one year later?

REPLY
cobleigh | @cobleigh | Oct 1 5:38pm

Metaplastic carcinoma triple negative. Just completed one year of immunotherapy. I had 4 months of chemotherapy and will have reconstruction on November 5th. I am feeling well but given the nature of the cancer, would like to know more about research on this type of cancer and any diagnostic tests on the horizon such as circulating DNA.
Thank you for any guidance.

REPLY
View MoreView Less
Please sign in or register to post a reply.