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Has anyone had distorted vision before other symptoms of TIA or Stroke

Stroke & Cerebrovascular Diseases | Last Active: Sep 17 12:14pm | Replies (9)
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@kristyinoregon

Hello Zebra,
Wow, sounds like a very scary fall. So glad you didn’t get hurt, surprisingly. I have had the black when standing, accompanied by a heaviness or tightness that goes from the top of my head down into my chest. Lasts a minute or so, then fades gradually. I don’t fall, there is time to stop and steady myself. This happens daily. Hoping BP meds will help with this…. Just stepped up to next level on the dosing today.
Your “pixelation” and ER experience sounds very similar. It is frustrating that they are so quick to dismiss you. I do have a diagnosis of CLIPPERS which has caused lesions in my PONS. I am on Prednisone and Cellcept. I have also recently started taking blood pressure medication. Between side effects of CLIPPERS meds, new BP meds and the lesions in my PONS, it is very hard to know why my body is doing these days.
Do you have a diagnosis yet? Sorry if you already mentioned it in a previous post. So many posts, so many people. Kristy

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Replies to "Hello Zebra, Wow, sounds like a very scary fall. So glad you didn’t get hurt, surprisingly...."
Zebra | @californiazebra | Sep 17 12:14pm

Hi @kristyinoregon
Yes, hard to keep track of everyone’s story. Sorry to hear about your diagnosis. I had to look it up. There are so many rare disorders.

I’ve had some low BP issues too caused by one of my cancer meds. It’s especially low when I’m in afib and I have to be careful when I first stand up and start walking. I’ve hugged a lot of walls and furniture. My fading vision and dizziness from that is completely different than the fugax and pixelation vision episodes. I have no doubt mine were TIAs as a result of having just been in afib each time which can create clots. I’ve discovered a major food trigger for me with afib and that’s tyramine so I’m hoping by avoiding those many many foods that I can avoid future afib episodes. So far so good.

Thanks for your response. Good luck with your battle. Rare disorders can be extra frustrating so I feel for you. I have some rare disorders myself. Blessings to you.

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