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DiscussionAnyone living long-term with DIPNECH on lungs?
Neuroendocrine Tumors (NETs) | Last Active: May 13 7:20pm | Replies (77)Comment receiving replies
Replies to "@gprior Hi Gloria. Sorry you have a tumor by your heart and need more surgery. No,..."
@californiazebra Zebra, were you told you might have to repeat the ablation? Like every 6 months? Is there a difference in "microwave" as opposed to a "freezing"? And were you put under for the procedure? I was told yesterday if I go through with it, it might destroy healthy lung tissue around the site, I could get an infection, and they would give me some pain meds., but I would be awake. The second nerve block really hurt, which I looked at as a good thing, because I figured they finally found the right nerve bundle. The N.P. said the ablation would probably be even more painful. And would have to likely be repeated every 6 months. What to do??
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Thank you for reply, I don't have a net's team, I rely on my thoracic surgeon and lung specialist and the team they confer with eg oncologist, Radiology and pathology. I guess we put our faith in the drs we trust,. My shortness of breath has increased over many years , because of heart problems my difficult breathing was always thought to be because of that but after ,it was found I had dipnech 6 years ago when the half lung was sent to pathology hence the shortness of breath. Obviously I'd had dipnech for many years. Thank you again