Why did you have a lobectomy? Were you told you'd be cured?

What stage are you? And are they saying local or regional spread?

They've been watching mine for 2 years---well, they WERE--and was told if this last CT was fine then we would go to yearly CTs, so that seems normal. In my case of course, it went crazy after tthe 18 month CT. Hope yours continue to stay stable!

@ponytail, Cancer can certainly be sneaky, and tests and scans aren't perfect, but pathology generally doesn't lie. Are they thinking that the neoadjuvant treatments cleared up the cancer, and that's why it's not showing in the tissue and nodes that were removed? If yes, that's a good thing. The treatments did their job and did it so well that they can't find any cancer cells. That MAY not mean that there are no cancer cells somewhere else in your body. I wonder if that's why they want to stay with the plan and continue on with radiation and more chemo. I'm not saying that this is wrong for a stage II patient (I'm not a clinician, just a patient like you). Ultimately your treatment is your choice, and it's difficult to make these decisions without good information. I feel for you, as these decisions can be so complicated, and we don't have medical degrees. Relying on our doctors to guide us, includes explaining why they recommend certain treatments and procedures. Are you in a position to seek a second opinion at all?

@julie67, thank you for sharing your experience, I feel greatly relieved to hear that if all is stable for 2 years it’s normal to wait a year for the next scan. I’m truly sorry that it didn’t go well for you, I’m such a pessimist about these things and sadly I cause myself so much undo misery, my mother always said to me that I don’t need any enemies because I’m my own worst enemy, sad but true. We just don’t get any guarantees in life and that’s the way it works, I try my hardest to live life one day at a time but sometimes it’s hard to do. I wish all the best in your journey back to good health and stability and hope to hear how you’re doing.

Hello @jewels85, Different doctors will certainly have different plans. and sometimes plans change. I wonder if they went into surgery thinking that you would be one stage but found that you were actually 3B. Did you have other treatment after the surgery; chemo or radiation? It's been almost a year now, how well did you heal from the surgery?

Lisa...that is exactly why the Dr's (both oncologist & radiologist)want me to accept this chemo/radiation treatment. There may be cancer cells lurking even though these biopsies didn't show any malignancy. Apparently chemo makes cancer cells more sensitive to radiation and so the combined therapy. Dr wants me to look at this as "insurance". Trusting my Dr team.

yes, they had done a lymph node biopsy the month before. Negative. So they thought Stage 1 but then showed in nodes when they took them out during lobectomy. It was done 6 weeks ago. I am not healed. Have stitches coming out of my back again today!! Told my PMP to just leave them. I have asked for pallaitive care. I can't get chemo which was the plan. I don't like the doctor because he gave me 2 side effects of chemo and that was it. I asked to switch doctors. They won't let me so nobody called back so i can't get chemo. So pallaitive care came last week and said i needed assisted living and then said she might call adult protective services on me. Wild. I give up. I must've pissed someone powerful off is all i can say. so wondering how long i live and how i die and what to do now. spinning. Nothing was done right in my case