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Looking for experiences with the progression of MDS

Blood Cancers & Disorders | Last Active: 55 minutes ago | Replies (43)
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@miketllc3

I was diagnosed with MDS over two years ago. My Hgb was at 7 at that time. I had a couple of transfusions at that time.
I am on my 30th cycle of Vidaza shots and now my Hgb is averaging 13.8. It took a few months for the Vidaza to kick in. I am feeling well. My white and red labs are all good as well at my platlets.
Good Luck to you,
Mike

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Replies to "I was diagnosed with MDS over two years ago. My Hgb was at 7 at that..."
dancouclanel4 | @dancouclanel4 | Nov 10 10:54am

I am on my 11th cycle of viadaza and ventoclox with astounding results. Hemoglobin has lingered behind but improved to 12.5. Platelets bounce back as well. WBC and ANC are in acceptable ranges.
FYI. MDS diagnosis was rendered over year ago followed by blasts to 26%. Lab results at that time rqr transfusion almost daily. I was admitted to hospital for viadaza and ventoclox...it did the job. It's taken 10 months to find a sweet spot on viadaza volume. AML is in remission but MDS lingers. I possess 5 mutated chromosomes.
Best on your journey

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