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symptoms present but lab markers aren't high
Polymyalgia Rheumatica (PMR) | Last Active: Sep 15 7:08pm | Replies (23)Comment receiving replies
"Experts who really know about PMR advise that you go back up to the dose where your symptoms were last relieved and then reduce much more slowly."
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This doesn't help you get off prednisone very quickly. Symptoms may not be caused by PMR/GCA. Symptoms may be caused by adrenal insufficiency because arthalgia and myalgia are also symptoms of adrenal insufficiency. Your symptoms might be something else entirely because a rheumatologist might say you don't have PMR anymore. It may be a combination of things.
How do volunteers on an internet website know what is going on if they don't even know your medical history or do a face to face medical examination? They can't even check your inflammation markers let alone know how much Prednisone a person should take.
I would rather take my rheumatologist's advice but that would be my personal preference.
Replies to ""Experts who really know about PMR advise that you go back up to the dose where..."
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Unfortunately there are some very ignorant rheumatologists out there. For example, the first one I was referred to did not believe I had PMR because my inflammation markers were not raised. He apparently was ignorant of the fact that up to 20% of people with PMR do not have raised inflammation markers.
That said, it very well could be adrenal insufficiency as you say.
But PMR goes into remission at different times (years) for different people, and some people never experience remission. In those cases it must be managed long-term with the lowest possible effective dose of prednisone or a biologic drug.