Aching from the most minor of exercise

Posted by spiker @spiker, Sep 7 1:58pm

Diagnosed with PMR early this year. Shoulders, elbows and knees. Started with Prednisone, tapered to 5 mg, but pain is back.

I am now experiencing aching in my back, arms, and legs after just a little exercise, like treading water in the pool for 5 minutes! I am not in terrible shape, and I would never feel like this before.

Is this just more PMR, or related to Prednisone, or ?..

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

@wendyi

I've been in PT since a failed knee replacement and then the revision for a few years now. My PT has graciously worked with what I presented so when this first kicked in end of July he just did very gently stretches. This week he incorporated a little more movement which I want and we were going slow because I had just started celebrex and didn't want to overdue. Somehow the hamstrings got overworked. On days I can I walk a little in the hood, today got on the stationary bike for about 20 min. I was very active gym rat, walking, cycling wise before all this so I know my muscles have atrophied. Little by slow. Have not redone bloodwork yet, will at some point. Naturopath has me taking 4,000 g of fish oil a day and dropping to 2,000 after 40 days for the rest of my life. He says research supports the oil in combo with heated castor packs to help break down inflammation and release it from the body. I use homeopathics (Apis and Rhus Tox have helped me), have been on an antinflamatory diet for more than 12 years. Resting so my body can heal listening to HZ frequencies has been the best medicine. I can't risk worsening my osteoporosis with prednisone and as a 3 time cancer survivor, am always looking for natural ways to help my body heal itself. I am certified in an energetic modality that is working to help my body on a quantum level. This is slow going, and still very painful parts of the days without a rhyme or reason but i have faith and am grateful I can flow with the healing. Would love to hear from others who tried or are trying to heal this crazy blood disorder without the steroids. My husband has had PMR twice and goes straight to the Prednisone so I do understand that is a good option for a lot of people. After chemo, breast imlant illness post mastectomies and IBD, I choose to be very careful of what goes in my body. I let myself get depleted this summer caring for grand toddler when preschool was closed, our daughter had a second mastectomy in Aug and my mom died. So my little body just shut down. It's part of my healing process to look at the why. Hope this helps.

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Wendi,
You've been thru so much, and I can tell you're a fighter.
I agree about being very careful about how you treat your body, inside and out.
Well understand why you don't want to go with the steroids. My husband also does very well on them (nasal polyps).
So bizarre that you and hub both have PMR! Makes me wonder.
Take good care of yourself and thx for sharing.

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@glinda47

Wendi,
You've been thru so much, and I can tell you're a fighter.
I agree about being very careful about how you treat your body, inside and out.
Well understand why you don't want to go with the steroids. My husband also does very well on them (nasal polyps).
So bizarre that you and hub both have PMR! Makes me wonder.
Take good care of yourself and thx for sharing.

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Thank you and all the best to you!

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@spiker

Update here! I did start at 20mg of Prednisone. My bad. Yesterday my Rheumatologist changed my diagnosis to RA. He said in the early stages of either condition, it’s difficult to diagnose. Does that sound right?

Thanks for your comments and support!

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I was told the same thing. Primary says PMR. Rheumatologist says RA

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@marymckeith

I was told the same thing. Primary says PMR. Rheumatologist says RA

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Frustrating

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@marymckeith

I was told the same thing. Primary says PMR. Rheumatologist says RA

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I had bloodwork done that ruled out RA and Lupus. Hard because there's no definatve test for PMR

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@wendyi

I had bloodwork done that ruled out RA and Lupus. Hard because there's no definatve test for PMR

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@. I didn't know that bloodwork could rule out RA. I have had extensive bloodwork and no one told me that. Appreciate your response.

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@marymckeith

@. I didn't know that bloodwork could rule out RA. I have had extensive bloodwork and no one told me that. Appreciate your response.

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Rheumatoid factor is the blood test that is positive when rheumatoid arthritis is active. The rheumatoid factor blood test was negative in my early blood tests but inflammation was elevated, so they diagnosed PMR rather than rheumatoid arthritis. I get paper copies of blood tests and discuss them with the doctor. It's helpful in understanding what is going on. Are you able to do that?

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Yes, I will be discussing the blood tests in more depth when I see my rheumatologist in a couple of weeks. Thanks so much.

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