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Anyone have experience with gastrointestinal stromal tumor (GIST)?

Sarcoma | Last Active: Nov 12 8:53pm | Replies (77)
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@lidycj51

I had A Gist removed from my lower small intestines back in 2012 was on Imatinib for 3 years. was fine and free until 2021 and got lung cancer, had upper right lobe removed no after treatment and was cancer free until now.
yearly scan showed another Gist showed up on my liver. I had 5 high does pinpoint radiation and they got it! I will probably be on Imatinib for the rest of my life which I dread! I just turned 70 a Masonry contractor and still working! I thank god every day for my life but I don't know if I can take much more of this.

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Replies to "I had A Gist removed from my lower small intestines back in 2012 was on Imatinib..."
Colleen Young, Connect Director | @colleenyoung | Sep 25 1:37pm

@lidycj51, that's quite a journey with cancer and a list of successful treatments. What a testimony that with 70 years, you're still working a physically demanding job.

You mention that you were on Imatinib back in 2012 for 3 years, but that you're dreading starting it again as a maintenance treatment. I get that. Did you have side effects on the drug back when you took it in 2012? When do you start it again?

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