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Transplant anti-rejection medications. What's your advice?

Transplants | Last Active: 19 hours ago | Replies (371)

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@rosemarya

@abider, Good Morning and Welcome from another Mayo Liver transplant recipient! I am happy to meet you here on Connect and I am interested in your participation in the clinical trial.
My transplant is actually a simultaneous liver and kidney transplant from an annonymous deceased donor at May Rochester in 2009 as a result of PSC. My immunosuppressant medications (Mycophenolate and Tacrolimus) have been working well for me now for 15 years with minor dosage adjustments that are guided by my labs and occasional increase of side effects.
While I was reading about your clinical study and your desire to reduce your tacrolimus, I am curious as to why or how you became involved in this study. Did you initiate this or did your transplant team refer you? Were you having bothersome side effects or are you looking to the future possibilities? Might I ask if you have any co-existing condition that would benefit from the potential switch? I look forwar5d to heating more of your experience with liver transplant.

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Replies to "@abider, Good Morning and Welcome from another Mayo Liver transplant recipient! I am happy to meet..."

Hi. Ya all. Hi rose ary. Jackie here from joisey!!!
Hope all is well.
Prior to Halloween,
I was taking 4 mg of tacrolimus a day down from 6 a day. I now am off that drug but taking sirolimus 3 mg a day.i still have numbness in feet and legs. And bathroom issues ..I will see how all this goes after stopping that pill. October was 4 yrs for me.but last time I was on sirolimus I broke out with mouth soars.now I have to keep an eye on this too.i will mention the study to my liver Dr. Take care Rosemary