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← Return to Y-90 liver cancer treatment: What's your experience?
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Y-90 liver cancer treatment: What's your experience?
Liver Cancer | Last Active: 4 days ago | Replies (216)Comment receiving replies
Hello - new to this - am stepping in on behalf of my husband, John, who has just this week gone through the mapping stage. He was diagnosed in last 7 weeks with liver cancer/primary. With a very large tumour 15 cm and then they found another one during mapping. He is not eating much and is totally depressed, I am reaching out to find some help. Reading your blog there is much reason to be hopeful. We are in Canada and the healthcare is good but not very communicative. Please advise if you have any appetite suggestions or any suggestions at all. We are kind of on our own here.
Replies to "Hello - new to this - am stepping in on behalf of my husband, John, who..."
Hi @mortimore, I can imagine how deflating that must've been to both your husband and you when they found another tumour when mapping in preparation for treatment. Naturally, I'm glad they found it so that both tumours can be monitored and treated.
You mentioned that communication is not very good where your husband is being treated. I wonder if you are at one of the major cancer centres in Canada? There are several different services that I encourage you to look into for you, your husband and your family. Many of the cancer centres offer the following:
- Social work https://www.albertahealthservices.ca/findhealth/Service.aspx?id=1047804&serviceAtFacilityID=1074213
- Spiritual support https://www.uhn.ca/PatientsFamilies/Patient_Services/Spiritual_Care
- Palliative care https://www.cancercare.mb.ca/For-Health-Professionals/palliative-care
I've added explanations of these services from 3 different provincial cancer centres as examples. Any of these services can be requested and can also help with communicating with your team and get support beyond treatment.
I'm sure your husband is grateful to have you by his side. How is he doing? How are YOU doing?
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I am more than 5weeks post mapping and still have not got appointment for treatment. I live outside Atlanta and use Emory for treatment. I have been with them and my primary Gastroenterologist for over 12 years. This is Nuclear medicine so dosage and type have to be individually made, this takes time and seems they try to do more then 1 at a time. I know that there are at least 3 others currently waiting for treatment. I do have a coordinator for this, hopefully you do as well. They are not always responsive as they also are waiting for answers for when treatment can proceed. So don't feel alone it is just part of process. It will happen just know that. Oh and be thankful you don't have pets as they will not be allowed to be around him after treatment for several days. Worries me how to keep them away.
neadkins